Really, part deux

It's Friday, March 10... Day 108;

I'm back from a few days on the road, trying to work for a living. It's scary, getting on that plane; the last 3 times I left Lee alone, things went birdcage and I ended up rushing back. Getting on that plane meant that I wasn't coming back until it was over... and I just wasn't sure about that. Fortunately, my kids, her friends and colleagues, and her sister kept watch over her while I was away.

Lee took advantage of my absence to keep recovering right along... still not back to where she was before this latest setback, but on the right path, anyway.

It seems that each setback has taken a greater toll on her; the surgeon told me that if I had a colectomy, I would walk out under my own steam in 7 days, pretty much recovered. But she started in such a weak state, it will likely take her over a month just to get back there... and then we have to keep on recovering up the ladder. I see a whole lot of physiotherapy in our future, but we have time, and nothing better to do than watch her improve.

One of her nurses is the daughter of old friends; she skated with our daughter, her Mom and Lee were figure-skating-parents (you know the type!), and her Dad and I got volun-told to do support work for a lot at test days, competitions, and carnivals that the Moms were running for the figure-skating kids. (you probably know all about THAT, too!)

Lee is working through some breathing and swallowing issues, and is so very weak, but she continues to be focused and intent on getting better. She is eating some things on her own, and is still being fed through the tube (supplemental) at night, as she is unable to take in enough food to sustain herself, yet. Appetite is also a factor; and nobody really understands how that works. Thank you to all the 'experienced' neuro-trauma types on here who have told me your stories; Lee isn't going through anything you wouldn't recognize, appetite-wise, but for a fat boy like me, not wanting to eat is just incomprehensible. Your stories have helped me to understand.

Neither of us really knows how long it will take my skinny bag of bones to get back to teaching Zumba, or even walking on her own... but we're on the road together, and we'll get there when we can.

All that matters is that she is alive... thank the Lord, and thank you for all your thoughts and prayers, she is alive and we might just recover from all this. I remember many dark days and nights when I just hoped and prayed for at least that much.

For the first time in months, I feel like this journey might have a happy ending.

Lee and I are in your debt, Team. We never felt alone.


So happy to hear things are on a steady upward climb...This is what Lee needs right now. To heal. And that is what happens while she is sleeping. I know it kills you to leave her but (as my glass is always half full) it does mean Lee does not feel obliged to entertain you & worry about the other things you need to be doing..Some people would only be thinking about me me me but Lee has nothing in common with that type of person. If she is strong enough to attempt some new things it will be in her mind to surprise you when you return.That somehow levels the playing field. She is not just trying to recover for herself but for you and everyone who loves her. Big responsibility. Is there anyway she is able to have a laptop at the hospital ? just because lots of skating starting on live stream CbC. Junior worlds is starting on Monday and we have quite a few good singles and teams competing.. Hope everything continues on it's steady climb. Get some rest and relaxation as Lee and everyone else needs you at your best.
 
@Gerry thank *you* for taking time during all this activity to post updates for us. I can only imagine how busy you must be trying to keep on top of everything that is being done for Lee, and to keep us in the loop is really thoughtful of you. Hugs and positive thoughts going out to both of you and your family.
Ditto. I admire your strength as Lee's continued support person/cheerleader and Lee's tenacity in working to heal. Keep on keeping on.
 
Well... that was brief.

Late last week, Lee started showing signs of an infection. Despite starting antibiotics, her condition worsened and our Doc elected to load her into an ambulance and ship her back to the University Hospital.

So they loaded her up and left, I went home and packed, and drove here yesterday to sit with her.

Emergency has ready access to all the Star Trek stuff, and so we went through there first... blood work ups, fluids and antibiotics, and a CT found the culprit to be a fluid abcess that's probably been building since her last surgery. The surgical team came by, poked and prodded, ordered more tests, and found us a room.

So here we are, waiting for some OR time and some concensus from the IR guys and the surgeons on the best next step.

She looks and feels better today, and we should know more soon.

Patience, Gerry... patience. ;-)
 
Okay, @Gerry, it's time to tell @Really it's time to stop being so ornery and putting you through all this excitement. ;)

Seriously, I am very sorry at yet another little set-back. But as everyone said at the start, it's going to be a long, long journey, and you are taking it so beautifully with her. If she never knew how lucky she was to have you, she certainly does now. Keep your chin up and keep on going, we're here to support you both through each and every long day.
 
Oh my gosh. I am so sorry to hear this. I hope and pray there is some more good news soon. @Gerry, this has to be taking a toll. Since you are in the hospital so much, alas, please get yourself checked too, and please, please try to do some serious self-care. Even long walks in the hospital neighborhood would be excellent for your heart, blood pressure and nerves.
 
My daughter accused me of having a 'Superman Complex'... I told her that offended me.

She asked why, I responded '

"I *AM* Iron Man"

Seriously, thanks, but I'm fine. I do better if I'm with her than if I try to go to work. I cancelled some bookings so I could stay right here.
 
((((((Lee and Gerry)))))) If the infection has been building since her surgery, is it possible that it was impeding her recovery? I imagine her body would have been directing energy towards fighting the infection rather than healing, so maybe the good news in your ordeal is that an obstacle to complete recovery has been exposed and is now being treated. Please let it be the last one, though, and hang in there.
 
My daughter accused me of having a 'Superman Complex'... I told her that offended me.

She asked why, I responded '

"I *AM* Iron Man"

Seriously, thanks, but I'm fine. I do better if I'm with her than if I try to go to work. I cancelled some bookings so I could stay right here.

She totally deserves a Superman/Iron Man guy in her life. You're a wonder, Gerry, but take care of yourself too (I know I sound like a broken record or a parrot repeating this).
 
Short update for today..

Yesterday, the radiology guys got together and did another dye-CT ... they planned to set a drain and clean things up without abdominal surgery.

The Neurosurgeons got into the confab and decided to operate today to externalize her shunt to protect her CNS from the infection while this was all going on. So they did that this afternoon. Lee is out of surgery, back in her bed, tired, but doing well.

Things we are happy about:
- the surgeon who did her colectomy found out she was back and had her transferred back to his care.
- her neurosurgeon and his team have likewise assumed charge of the Neuro stuff.
- They transferred her back to the Neuro ward where she spent 5 weeks.. one room over, and all the nurses and LPNs recognize us and came around to see her. She has been spoiled rotten since we arrived.

As of now, she is resting quietly, her vitals are better than we have seen in a week, and people are telling us 'Relax. We got this. We'll get her better.'

Thanks for thinking about her.

More to come.
 
I feel for you, Gerry. You get that feeling when you leave, and sadly most times it turns true.
I suppose many of us know that "feeling" when you get on a plane, train and anything.

However, I'm glad Lee is in good hands. Away from home, but in very good hands.

I very much remember the day of my father's surgery, I had that "feeling" and wasn't even surprised when the phone rang. I called a taxi because I was sure I may get arrested for speeding or cause an accident.
The doctor called my cell when I was still riding the taxi, and as soon as I shut the phone, I felt the driver shift up the gear.
Probably because I was telling the doctor I'd be there in 3 minutes......an impossible thing to do. LOL

Enough about me. My thoughts are with you two.
 
@Gerry, thanks so much for the updates. Sending healing vibes as usual.

I have a question that I think many people here must be asking themselves: Is there any way we could increase the probability that our partners could react to such a situation with your particular combination of strength, optimism, realism, love and humour? If you are taking interns, I want to send someone. ;)
 
Hoping that things with respect to the infection are being brought under control and that there is more positive progress!

You both continue to be in my thoughts and prayers @Gerry.
 
@Gerry, thanks so much for the updates. Sending healing vibes as usual.

I have a question that I think many people here must be asking themselves: Is there any way we could increase the probability that our partners could react to such a situation with your particular combination of strength, optimism, realism, love and humour? If you are taking interns, I want to send someone. ;)
Thanks, but be careful. They may pick up all my bad attributes, at the same time! :-)

Lee has put up with me and always been there for me for 34 glorious years... it's only fair that I have to spend some time being there for her.
 

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