Sorry to hear about the setback, but I have to remember how far she's come from when this all started. Continued prayers and good thoughts for continued progress.
I'm so sorry to hear that there has been a setback, but I continue to send prayers and strong thoughts your way as you both continue to fight through this.
So sorry it's been a rough patch for Lee, Gerry, which is obviously rough for you as well. Hope your next update is better. Perhaps some ups and downs are to be expected?
Sending my positive thoughts to you @Gerry, I hope this journey gets easier for you very soon, life just doesn't seem fair at times ((hugs)).
Not the news any of us want to read So sorry for Lee's further setbacks. Here's hoping things have gotten better since you last updated us. We appreciate the info and continue to send love and support your way @Gerry and Lee
So sorry to hear of Lee's setback. I hope there is some good news soon and she is back on track toward recovery. You are both in my thoughts and prayers. Thank you for the continued updates.
I'm seeing a lot of churches in our travels in Europe. Even though I am not Catholic, I say a little prayer for Lee
@Gerry -- Sorry to learn of Lee's recent setback. Sending thoughts of strength and support for both of you.
Good morning. Over the last week, doctors added an antifungal to her antibiotic regimen; seems the lab picked up a yeastie bug in a urine sample. Don't know if that was the culprit or if the bug killers are making headway, but Lee started talking a bit on Friday and made some other slow progress on the weekend. She is more alert this morning, had a nice shower and is sitting up in a chair, looking out as the snow falls here in Edmonton. We spent a nice half hour reading through another batch of cards and letters... thank you all so much for these. She has been trapped inside these concrete walls (And sometimes in her own head) for 153 days now... your cards and letters really brighten her day. She gets to think about you, about where you're from, about how you first met online, if you met in person... it gets her out of jail, if only for a moment. We got the card that a whole bunch of you signed and mailed from Worlds in Finland... we were both moved that even in the midst of an event you all so enjoy, you found a moment to get together and think of her. I have to say, my wife has some really special friends. She has started to develop some spasticity in a few muscles which might cause some contracture issues, so tomorrow morning, we will get a consult from the lead specialist doctor with the spasticity clinic, which may lead to some advance treatment for that issue. As usual, we are thankful for the amazing care she gets every day... She continues to be followed by an array of neuro-specialists, GI team, general surgery team, speech pathologists, hematology team, and is supported by nurses, diagnostic imaging specialists, lab tech's, and therapists. As many of you have mentioned, everything is connected to everything else. More to come...
Urine infections can have some very strange effects, glad they have caught that. What a great team you have behind you and Lee is so fortunate to have you pushing her along, being so supportive and loving. Best wishes to you all for a week that keeps moving forwards ,
Lee is a fighter and Gerry is the best coach she could ever have. And all her fans from across the world will never ever stop cheering Team Lee & Gerry on!
Thank you so much for the latest update, Gerry. I'm grateful for an improved report. I'm glad that all of the specialists are working together to avoid long-term issues and complications. I'm aware of how important that can be. We are here to offer the support of "FSU's Caring Circle" for as long as needed. I feel privileged to be a small part of that.
Awesome news regarding Lee's progress, Gerry. Thanks so much for the latest, and continuing prayers for both you and Lee. <3
@Gerry if they don't mention it at the spasticity consult, ask them about placement of a baclofen intrathecal delivery pump at some point. Unfortunately, it will require a surgical procedure to place the pump and the catheter which delivers the drug directly to the spinal canal, but intrathecal baclofen really works. Oral not so much as the dose has to be really high to be effective.
Thoughts and hopes are with you and Lee and the entire family. It's a tough slog, and we all know you'll love her through it.
Praying for you guys and @Gerry I finally got a date for my first surgery the total colectomy with permanent ileostomy- next Friday. Lee will have another #ostomare friend!
