Really, part deux

[Lovemyvike]

Oh no! I'm so sorry to hear about this complication. I'm in awe of the strength you've shown Gerry and the resilience of Lee. Wrapping our support around you and your family during this difficult time....

 

[ChelleC]

Just reading this now. Prayers for both of you.

 

[Wyliefan]

Praying!

 

[4rkidz]

I have enjoyed communicating with Lee on FB. Snarking and getting food updates. So sorry this has happened, but glad everything seems ok cognitively. Hopefully this will be the final bump in the road and then Lee finally heads home and @Gerry can have less stress in his life. You guys are such troopers and so inspirational.

 

[Spun Silver]

@Spun Silver I was going to close it as Lee had started posting, but let’s keep it a while longer. Perhaps she can start the next one.

Yeah, it doesn't seem like the right time to close it at all, alas. Hopefully soon!!

 

[Mozart]

Positive vibes!

 

[mysticchic]

I just saw this. I am so sorry. Always 2 steps forward, 1 back. You both are in my prayers

 

[LilJen]

Oh, gosh, how discouraging this must be for you both. I hope you have MANY loving friends and family who can give you help during this time. It all seems like so much to bear. Good sign that she was alert there, though. Praying.

 

[Gerry]

Hi, everyone.

Its Sunday afternoon, Day 754, and Lee is still hanging in there!

The simple surgery the other night went strange when establishing a secure airway proved almost impossible; the geometry of her jaw and throat have changed during all this, making intubation non-routine and difficult to maintain... the fact that she has already had one non-routine tracheostomy added another complication she just didn't need.

In any case, things turned from routine to exciting and have led to a few days of enforced rest... the Docs have left her shuntless to see if a new shunt is even required, and she is still intubated, in case another surgery (to implant a new shunt) is required.

Lee is awake, cognitive, and communicating via sign language and fingerspelling; however, there are indications that a new shunt may be in her future, so we are still in limbo until the symptoms push her one way or the other.

Thanks for the thoughts and prayers; things were pretty tense for a few days, and we are still not out of the woods. More to come...

 

[cholla]

Thank you for keeping us posted Gerry. I'm sending tons of good vibes and hugs. 754 days. Something inside her is made of iron, whether it's her willpower or her patience or capacity to accept and cope with the never ending roller coaster of her health troubles. And your love for each other is so touching and inspiring. You are wonderful people ♥♥♥

 

[Finnice]

Seconding @cholla .
And all the positive energies from here to you!

 

[Spun Silver]

So glad Lee is alert. So sorry you have both had even more troubles to overcome. I'll hazard a guess she is communicating that she doesn't like being intubated one little bit. Hang in there, friend. May our strength be transmitted to you both whenever you need it.

 

[purple skates]

Much support and love being sent your way, @Gerry. Unless you or a loved on has been intubated, it’s hard to truly understand how awful it can be.

 

[Japanfan]

Thank you for keeping us posted Gerry. I'm sending tons of good vibes and hugs. 754 days. Something inside her is made of iron, whether it's her willpower or her patience or capacity to accept and cope with the never ending roller coaster of her health troubles. And your love for each other is so touching and inspiring. You are wonderful people ♥♥♥

The human spirit can be such an amazing thing.

@Gerry. Unless you or a loved on has been intubated, it’s hard to truly understand how awful it can be.

 

[NeilJLeonard]

Hi, everyone.

Its Sunday afternoon, Day 754, and Lee is still hanging in there!

The simple surgery the other night went strange when establishing a secure airway proved almost impossible; the geometry of her jaw and throat have changed during all this, making intubation non-routine and difficult to maintain... the fact that she has already had one non-routine tracheostomy added another complication she just didn't need.

In any case, things turned from routine to exciting and have led to a few days of enforced rest... the Docs have left her shuntless to see if a new shunt is even required, and she is still intubated, in case another surgery (to implant a new shunt) is required.

Lee is awake, cognitive, and communicating via sign language and fingerspelling; however, there are indications that a new shunt may be in her future, so we are still in limbo until the symptoms push her one way or the other.

Thanks for the thoughts and prayers; things were pretty tense for a few days, and we are still not out of the woods. More to come...

NJL

 

[Gerry]

Over the last 12 hrs, things took a turn downhill, and Lee became unresponsive; the CT showed that she is still shunt-dependent, and now she just went into O.R. ... hopefully. I will have good news in a couple hours.

 

[skatesindreams]

Sending prayers, energy and support

 

[attyfan]

Still praying ...

 

[UMBS Go Blue]

Thinking good thoughts. <3

 

[manhn]

Oh, Gerry. I look forward to the good news!

 

[Aceon6]

Hang in there, Lee.

 

[Habs]

Thinking of you guys. Hang in there!

 

[BelleBway]

Oh @Gerry, I am sending so much love and good vibes as you go through yet another crazy roller coster ride. Your love for Lee shines through all your posts, she is incredibly lucky to have you. Thanks for continuing to keep us all updated.

 

[WildRose]

Lee and Gerry - my thoughts are with you both today.

 

[Kruss]

Just catching up with the latest. I'm praying!! Please hang in there!

 

[Spun Silver]

Lord, have mercy!

 

[skatemomaz]

Oh Gerry, I am so sorry. Healing thoughts for you and Lee.

 

[kimkom]

Wishing, hoping, praying, crossing fingers and projecting all the love we can to you and to Lee. She just has to bounce back. For you, for your beautiful family and mostly for her fabulous self.

 

[BittyBug]

@Gerry, we are all pulling for you and Lee. Sending healing vibes....

 

[suep1963]

Prayers