Lizziebeth
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Gerry, what an ordeal for Lee and you and family. I am glad they figured this out. May the surgery go well and Lee will be on the road to recovery.
I had exactly the same thought... one failure is unusual, 2 is downright strange... 3 is outside the envelope, so when things started deteriorating again, the Doc and I sat down with a whole team... the Pediatric Neurosurgeons Shunt team from the Stollery Children's hospital (they do more shunts than anybody), the Infectious Disease team, the Internal Medicine Team, and eventually decided it had to be biological - and they finally got a culture to grow and identified the little beastie.
Lee has a shunt infection, and the bugs are clogging up the works. They have had her on the right antibiotic for 10 days now (prophylactically, which is really fortunate) and so they are already winning the battle. (Conversely, that's why it was so hard to get a growth culture.) So now we have a new game plan: Tomorrow morning, they will remove all of the shunt plumbing and hook Lee up with an External Ventricular Drain (EVD) for the next 10-14 days, while they finish killing the bug. Then, when they're sure it's gone, she will get a brand-new sterile shunt system.
So 2 more surgeries, more Borg Hardware, and maybe we will finally be into the recovery leg of this journey.
Today is Day 355. It will be over a full year in Hospital for Lee before she gets out of ICU.
I have no right to ask for more, but please hold her in your thoughts tomorrow morning.
So 2 more surgeries, more Borg Hardware, and maybe we will finally be into the recovery leg of this journey.
Today is Day 355. It will be over a full year in Hospital for Lee before she gets out of ICU.
I have no right to ask for more, but please hold her in your thoughts tomorrow morning.
but please hold her in your thoughts tomorrow morning.