Baby Charlie Gard's life

[oleada]

I guess the doctors and hospital are having a big celebration of their victory.

What a nasty comment. Do you think that the nurses and doctors who cared for Charlie are happy he was dying? Don't you think they would do everything possible to make him better if they could? These people have worked endless hours to care for this poor child and it's exhausting work, physically and emotionally. I am sure that they are relieved Charlie is no longer suffering but saying that they are celebrating his death is just sick and heartless. It is a loss for them too.

 

[allezfred]

RIP to Charlie. Sad day for his family and all the health professionals who worked hard to keep him alive.

 

[allezfred]

I guess the doctors and hospital are having a big celebration of their victory.

I probably shouldn't give you the attention you crave, but you are a total shithead.

 

[Spiralgraph]

Rest in peace little Charlie. No more suffering, for him, just his parents.

 

[caseyedwards]

What a nasty comment. Do you think that the nurses and doctors who cared for Charlie are happy he was dying? Don't you think they would do everything possible to make him better if they could? These people have worked endless hours to care for this poor child and it's exhausting work, physically and emotionally. I am sure that they are relieved Charlie is no longer suffering but saying that they are celebrating his death is just sick and heartless. It is a loss for them too.

They didn't do everything possible. That was the point of the case. To them he had a "duty to die" and was wasting resources.

health professionals who worked hard to keep him alive.

Lie

 

[skatefan]

They didn't do everything possible. That was the point of the case. To them he had a "duty to die" and was wasting resources.

Don't be so bloody ridiculous. What a disgusting person you are.

 

[allezfred]

Ugh. The stench of Eau de Troll is overpowering.

 

[MsZem]

It's just been announced that Charlie has died, RIP.

It's good that Charlie will not suffer any more, but this is still desperately sad for everyone who cared for him. I hope his parents can find comfort and peace. And if they will indeed follow through on their earlier intention to use the funds that were raised to start a charity for mitochondrial depletion syndromes, that would be a wonderful way of commemorating their son.

 

[Kasey]

I guess the doctors and hospital are having a big celebration of their victory.

You psychotic ****wit don't even know what side of your ass you're talking out of with this one. Troll is one thing; malicious and cruel is another. When YOU have had the duty to take care of dying people in all stages of life, dying of all kinds of afflictions, including those being kept alive solely by machinery and advanced medical technology despite having no chance of survival, THEN you make that kind of statement, you arrogant nasty piece of crap.

 

[VGThuy]

I guess the doctors and hospital are having a big celebration of their victory.

No, but I bet YOU are. It gives you more material to work with to get the attention you desperately crave.

 

[SHARPIE]

I guess the doctors and hospital are having a big celebration of their victory.

Piss off and think of the poor children there that are also being treated by them rather than this hopeless, futile and rather selfish case.

While you enjoy a 7 day ban.

 

[skatesindreams]

Kasey, entire post:

You said it so well!

Thank you, SHARPIE.

 

[Simone411]

A very sad day indeed. RIP sweet little Charlie.

 

[Simone411]

I guess the doctors and hospital are having a big celebration of their victory.

I just now saw that post. I'm sorry, but with as much death as I've seen in my lifetime (family members, my wonderful beautiful mom, dad, cousins, aunts and uncles), I cannot believe you actually posted that. I nearly died myself and I had the best nurses, doctors, CNAs there could possibly be.

Celebrating a victory???????????????????? You certainly do have a very warped mind.

 

[judiz]

First, I pray Charlie's family gets the emotional support they need whether from family, clergy or professional grief therapists.

On August 2, 1996 I had an emergency caesarean after my baby, Joshua, went into fetal distress. My beautiful 5 pound son was born with severe merconium inhalation requiring he be connected to a respirator ASAP. The merconium burned the lining of his lungs. His Apgar score was 3, the second score was 7. Within hours he developed pulmonary hypertension, he had internal bleeding in one lung, the other collapsed. He had tubes in his arms, legs, head and down his throat. He developed sepsis.

On August 3rd the doctor told us her back was to the wall as far as our son was concerned. Then on the 5th the doctor came to us with a permission form to try an experimental treatment, developed by the March of Dimes, which could repair the damage to our son's lungs. I didn't hesitate, I signed the form and the medication was administered to Joshua. Five days later, Joshua took his first breath on his own. On August 12th he was discharged from the hospital.

The experimental treatment is now administered to all preemies to help their lungs mature.

Reading Charlie's story and thinking about my son's fight, I honestly don't know what I would had done had that experimental treatment not been available. Woukd I have the strength to let my son go if the doctors felt it was in his best interest? Would I had searched the planet for a miracle?

 

[taf2002]

First, I pray Charlie's family gets the emotional support they need whether from family, clergy or professional grief therapists.

On August 2, 1996 I had an emergency caesarean after my baby, Joshua, went into fetal distress. My beautiful 5 pound son was born with severe merconium inhalation requiring he be connected to a respirator ASAP. The merconium burned the lining of his lungs. His Apgar score was 3, the second score was 7. Within hours he developed pulmonary hypertension, he had internal bleeding in one lung, the other collapsed. He had tubes in his arms, legs, head and down his throat. He developed sepsis.

On August 3rd the doctor told us her back was to the wall as far as our son was concerned. Then on the 5th the doctor came to us with a permission form to try an experimental treatment, developed by the March of Dimes, which could repair the damage to our son's lungs. I didn't hesitate, I signed the form and the medication was administered to Joshua. Five days later, Joshua took his first breath on his own. On August 12th he was discharged from the hospital.

The experimental treatment is now administered to all preemies to help their lungs mature.

Reading Charlie's story and thinking about my son's fight, I honestly don't know what I would had done had that experimental treatment not been available. Woukd I have the strength to let my son go if the doctors felt it was in his best interest? Would I had searched the planet for a miracle?

Thank God you'll never have to know.

 

[Vash01]

I guess the doctors and hospital are having a big celebration of their victory.

That's a ridiculous statement. There was no victory for anyone in this case. I am sure the doctors and hospital truly cared for little Charlie. It is a sad day for everyone, particularly for the parents. My heart goes out to them. I hope they will find peace at some point.

I am sure little Charlie is resting in peace, now that he is free of his sick body. He must be with the angels now. I am sad that he had this sickness and he suffered so much in his very short life. Of course everyone would have liked him to grow up a healthy boy, but it was not meant to be. Everything happens for a reason. I am sure there was a divine purpose in this.

 

[Japanfan]

The experimental treatment is now administered to all preemies to help their lungs mature.

Reading Charlie's story and thinking about my son's fight, I honestly don't know what I would had done had that experimental treatment not been available. Woukd I have the strength to let my son go if the doctors felt it was in his best interest? Would I had searched the planet for a miracle?

Not all experimental treatments are the same in terms of the research that has been done on them, and expected outcomes.

The experimental treatment that was being offered to little Charlie had not even been tested in mice, and earlier in the thread it was posted that the treatment didn't offer improvement, but might only stall deterioration.

The treatment you describe here Judiz is different in that it was a promising one that would be widely utilized.

If that treatment had not been available and you had had to let your son go, you would have just done it, even if you didn't feel you had the strength. You don't have a choice in a situation like that.

 

[Vash01]

RIP Charlie, sweet little boy. It's a sad day for many, but much harder for his parents. May they find some solace in their memories of their son, and may they find real peace.

 

[Lorac]

RIP Charlie. You had a short life but were loved so much by so many. Your suffering is over and I hope your parents can find some peace in their grief which must be horrendous.

And thank you to all those at GOSH who worked so hard to help Charlie. They never stinted in their care even when being abused by strangers.

 

[Lorac]

They didn't do everything possible. That was the point of the case. To them he had a "duty to die" and was wasting resources.



Lie

I usually ignore trolls but you are one disgusting human being. I suggest you read up on the case before passing judgement on people who have more integrity in their little finger than you have in your entire body.

 

[hanca]

I guess the doctors and hospital are having a big celebration of their victory.

Jeeez, are you really that stupid, or are you just attention seeker? If the former, I don't think there is anything at all that can be done for you. If the latter, I think you need some serious therapy.

 

[Deleted member 1204]

I guess the doctors and hospital are having a big celebration of their victory.

Having gone through this before from the doctor/hospital side, I can assure you that they are not. It is a horrible situation for everyone involved.

 

[becca]

They didn't do everything possible. That was the point of the case. To them he had a "duty to die" and was wasting resources.



Lie

First of all as a matter of principal I would have let parents take baby elsewhere. BUT. Just because you can do experimental treatment doesn't mean you should. If a patient's condition is to far gone, than all you may be doing is causing more pain to everyone involved, especially if the child is already gone.

Recognizing your not God and you can't do everything, doesn't make you a bad or uncaring doctor. In fact it makes you a better one. As someone who believes in heaven, little Charlie far better off than you or me right now. Its his family that is suffering.

The doctors at Gosh may be more ethical than the doctor who offered the treatment without looking at the little one.

These doctors and nurses didn't join their field because they want to see patients die. And no offense, ethically, we do need to think of resources. And the fact that there are children right now who can be saved but aren't saving. Due to lack of doctors/basic medicine. I am not talking about Euthanasia. But as Catholic this is where the difference between extraordinary/ordinary care. But doctors and can and should look at who reasonably they can save and should focus on the one's they can.

I think its wrong to criticize looking at those resources. Because often the resources revolve the lives of others.

Now GOSH is a research hospital, so I am sure if they felt the experimental treatment would help this little one, they would have done it.

 

[Angelskates]

First of all as a matter of principal I would have let parents take baby elsewhere.

You think it's okay for a baby to be forced to continue to be in pain and suffering? In what instances do you think the courts should be able to intervene on behalf of a child?

If God wanted Charle alive, he would be alive. God's all powerful remember? Keeping Charlie on life support could as much, if not more, be considered playing God than taking him off.

 

[once_upon]

As a nurse who spent her whole career in pediatric nursingsing, I can state without reservations the medical and nursing and other staff were not celebrating or rejoicing.
I have no doubt that tears were shed, maybe a bit of relief that this child was no longer in pain, but there was no joy or cheering.

 

[Japanfan]

As a nurse who spent her whole career in pediatric nursingsing, I can state without reservations the medical and nursing and other staff were not celebrating or rejoicing.
I have no doubt that tears were shed, maybe a bit of relief that this child was no longer in pain, but there was no joy or cheering.

I knew a nurse who worked in critical care, and whenever a patient died - which was frequently - candles were lit and cards were written to the patient.

It would be impossible to be a nurse if you celebrated the death of your patients. Though as you say, there may have been a bit of relief, but I'm sure it would have been touched with sadness because little Charlie never had a chance for life.

 

[becca]

You think it's okay for a baby to be forced to continue to be in pain and suffering? In what instances do you think the courts should be able to intervene on behalf of a child?

If God wanted Charle alive, he would be alive. God's all powerful remember? Keeping Charlie on life support could as much, if not more, be considered playing God than taking him off.

First of all as I said earlier if I was his parent I would have listened to the Doctors based on the knowledge I have.

But I am uncomfortable with the Courts being the decision makers especially in a case where the parents only wanted to try for 3 months.

But I agree leaving on life support is playing God.

 

[misskarne]

But I am uncomfortable with the Courts being the decision makers especially in a case where the parents only wanted to try for 3 months.

You're okay with parents putting their child through significant pain and suffering because it's "only" three months? You're okay with the parents putting their child through significant pain and suffering even though there is absolutely no chance and no hope that their child is going to live?

 

[Angelskates]

But I am uncomfortable with the Courts being the decision makers especially in a case where the parents only wanted to try for 3 months.

What if it was 4 months? 6? A year? How long is it acceptable for you to allow a child to be in pain before you think it's okay for the courts to intervene?

That's why the UN Convention for the Rights of a Child exists; children have rights and when parents (or anyone) put their rights (of choice to determine what should happen with their child) above their child's, the court should intervene.

For me it's the shortest amount possible. 1 day of a child suffering unnecessarily without actions being made to assist is too long. The experimental treatment was to prolong life (existence) for the parents' benefit not to improve quality of life for Charlie.