Really

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Special Christmas Eve prayers were offered at Christ Church Cathedral in Ottawa this evening for @Really and her whole family. You know that we are all "with you" @Gerry, we appreciate the updates, and would give both of you hugs if we could! Thanks for keeping us updated. May Christmas 2016 be just the beginning of many happy ones for you!
 
Merry Christmas, Skatefans!

The nurses in ICU tell me they have been receiving cards from all over that mention Lee, Really, and many have references to Figure Skating. They are arranged on the charge desk, and everyone appreciates your gesture!

A number of them have been making the trek next door to this ward to check on Lee and say hi. She gets stronger every day, and another day away from the event that put her life in danger. When I'm frustrated about her consciousness level, I have to remember that. Some days, just not regressing is a victory.

Have a great day with your friends and families... I'm sitting here with the only Christmas present I ever wanted.

Life is good.
 
Belated Merry Christmas to you and Lee, @Gerry. Glad Lee continues to heal, but it will continue on her own schedule. We found that out during Mrs. Reuven's kidney transplant. Your being there will mean everything to Lee. May she continue to heal and we will continue to send our thoughts, hopes and wishes.
 
Good morning, everyone.

Lee and I have had a pretty quiet Christmas. Not much happens on the ward, and her only present was a stuffed kitty to snuggle with. We get out every day to tour around in her wheelchair. I'm getting my exercise, anyway.

She has been sleeping a lot ... enough to worry me, but the nurses keep telling me that it happens sometimes, and that she is much more physically stable than she was. Let her heal, they say.

Yeah, there's that patience thing again... Patc keeps telling me to work on that. I am, but I think I'm a slow kid, because it isn't getting any easier.

Sometimes, she opens her eyes but seems to see right through me... other times, she is so lucid you think that she is finally ready... and then she sees me and goes back in her hole and we have 6 more weeks of winter.

The grandkids have all come around to try waking Nannie up, with not much success. It was hard on the older 2; the littles didn't know what to think, but when told that she's just really tired, they seemed to accept it.

The care here continues to be great. The doc stuck her in an MRI a few days ago to check some things... for those who haven't experienced it, an MRI is LOUD... boy, did that ever wake her up!

More tests today; her trache is out and all healed up, she seems to be swallowing on her own, but the speech paths want to check. They're also going for an EEG, to compare to an earlier one and look for anything unusual.

The nurses in ICU want me to thank you guys for all the cards.. coming from all over the place, all have something on them about figure skating... they thought it was pretty cool.

Lee's boss is coming up today with the box of mail from the school... there will be lots of cards in it. I want Lee to be awake with me while we open them... I want to see her smile when I read the cards and the names to her..

Thanks again for keeping her in your thoughts and prayers... you're good folks; Lee is lucky to have friends like you.
 
Gerry, great news! I was in and out for the 1st few weeks when I came too. The brain is a funny thing. Sometimes I am hyper focus and other times I can't figure out what I am looking at. It could be any number of reasons. I know when there is too much stimuli or light everything is a big blur. I panic and just freeze. I can't figure out what I am looking at. Everything is a big blurry picture.
I slept a lot the 1st few months. My doctor said it's the way the brain repairs it's self. Sleep is good. almost 12 months later I barely sleep.
I am so happy she has someone who loves her and stays by her. That is so important.
 
Seconding what @mysticchic said about the importance of sleep in recovery. Loooooooots of sleep. A permanent added fatigue is very common too but one can learn to manage it and minimize it. Unfortunately recovery is not always easy to see or linear. My husband had a lot of amnesia. It was very distressing when he didnt recognize me. Even when that passed, he had a long, long period of semi-amnesia where he invented all kinds of false memories to fill in all the gaps. It was crazy-making as nothing anyone could say could convince him that his stories were false. Amnesia that lasts that long is usually considered a bad sign for recovery, but eventually he made a really good one (knock on wood). Truly, each person and his or her recovery is different, and you will be the expert on hers, very likely for a year, maybe even more. Even now (2 years out) my husband doesnt manage his medical care. He lives in denial (which actually served him well... he WILLED himself back to almost-normalcy) and has no interest, so anything I think he needs, I arrange myself.

In other words: patience. :) And take care of yourself, because the burden is so very heavy.
 
Thank you so very much Gerry for taking the time to give us regular updates, news/tidbits of your life and Lee's recovery. Obviously you don't have to do it and the fact that you do warms my heart and makes me so grateful. God bless you and arms you with patience and strength for the road ahead.
 
@Gerry, I know that look and have experienced it a lot. My sister used to tell my son he was going in his "hidey hole". It's hard when you know they aren't really with you and may not know who you are. You just wait for the moments they do. And, you never know what the trigger might be. Talk to her about normal everyday things. The cats. Since she's in a room, try and watch some of the Canadian National Championships in a couple of weeks (even if you hate skating :) ). That's something she liked and may respond to. You just don't know.
 
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