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  1. #1461
    Registered User
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    The hydromorphone is in pill form yes.
    And as of now there is no pain really, that's the least of my worries because ALL I feel is the suffocating. I just can't get ANY air it feels.
    Got my 2nd transfusion today but am still not noticing any improvement. Ughhhhhh.
    And I really don't want to move anywhere. Where I am now is basically a hospice I'm told anyway.

  2. #1462

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    Jesse, Wish you easy breathing and a restful sleep

  3. #1463

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    More tears and sympathy from me. It feels so helpless to be reading your posts, Jessie.

  4. #1464

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    (((Jesse))) keeping you close in my thoughts today *hugs*
    'The one. The only. Daisuke Takahashi ' Chris Howarth, EurosportUK

  5. #1465
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    ((((((Jesse)))))))

  6. #1466

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    My heart and thoughts are with you, Jesse.

  7. #1467
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    I hope you had a restful night Jesse.

  8. #1468

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    I hope it is some comfort to you to know that so many are thinking of you, praying for you, and doing what they can to help support you.

  9. #1469
    Tranquillo
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    Jesse, I join with everyone here in wishing there was something we could do for you besides keep you in my thougts and prayers.
    "The Devil is joining in, and that's never a good sign." Phil Liggett

  10. #1470
    moving right along
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    Jesse, do you have access to a therapist who can work with you on your breathing issues and on the sense of dread that you are experiencing?

    Your feelings are so important; they may be the only thing you can actually take control of in this terrible illness. Have you been offered grief counseling? I earnestly hope that you will find someone to help you shift your emotional focus and find ways to cope with the fear and despair that sometimes must be overwhelming. I also hope that throughout all this you know how much we care about you.

    Get through today, sweet man, and grab hold of as much peace and love as you can. (((Jesse)))

  11. #1471

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    I'm thinking about you, Jesse. I really hope that you feel better soon.

  12. #1472

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    (((Jesse))) Peace and love to you.

  13. #1473
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    thinking about you jesse....hope today brings you some relief, comfot and sleep

  14. #1474

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    Jesse, I'm thinking about you and wishing we could do something. I hope you get some relief soon....

  15. #1475
    Registered User
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    (((Jessie))) I pray that you have easier breathing and more comfort.

  16. #1476
    The "NICE" Admin
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    (((Jesse)))

  17. #1477
    Satisfied skating fan
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    Jesse, you might ask your physician to try breathing treatments with albuterol and see if it helps with the feelings of suffocation. Talk to them and ask about a respiratory therapy consult if you haven't tried this. I understand you might feel your medical team isn't helping, but it is very important that you communicate your needs, feelings and symptoms. Communication has to flow between the patient and the medical team. I hope you have a good night.
    Those who never succeed themselves are always the first to tell you how.

  18. #1478

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    Wish I could be there to hold your hand through this. Do what you can and know that you are loved by many. Hoping you have an easier night.

  19. #1479

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    I haven't posted in this thread before because I don't know what to say beyond what has already been said, but sending my best and wish I could help. We are all with you in spirit.

  20. #1480

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    ((jesse))
    You should never write words with numbers. Unless you're seven. Or your name is Prince. - "Weird Al" Yankovic, "Word Crimes"

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