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  1. #1441
    Quadless
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    Oh, Jesse. I'm so sorry things are getting even worse, but I hope that yesterday's transfusion will show some benefits today. I'll be thinking about you today.
    "I miss footwork that has any kind of a discernible pattern. The goal of a step sequence should not be for a skater to show the same ice coverage as a Zamboni and take about as much time as an ice resurface. " ~ Zemgirl, reflecting on a pre-IJS straight line sequence

  2. #1442

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    (((Jesse))) I'm so sorry that you are having such a hard time. I'm praying for you to have a peaceful, painless day.

  3. #1443

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    Quote Originally Posted by orientalplane View Post
    How I wish we could take your pain and distress away.
    She speaks for all of us, Jesse.

  4. #1444

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    I hope the transfusion is helping by today.

    Could one of your doctors have a phone consultation with a hospice physician to find out what else might help reduce the suffocation feelings? More methadone or morphine? Methadone helped my dad more than morphine. (This was a recommendation from his excellent hospice doctor.)

  5. #1445

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    Jesse, I'm very, very sorry to hear you are suffering so.

  6. #1446

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    Praying for a peaceful day for you, Jesse.

  7. #1447

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    Jesse, I'm so very sorry for your suffering. You deserve so much better. Hope you can feel the love coming from all of us and the wish that we could do more. Hugs and prayers for your day to be a little better.

  8. #1448
    Thunder & Lightning!!!
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    Jesse...wishing you a peaceful, pain free day. My heart, thoughts and prayers are with you.
    Peace & Love, Gypsy
    Even a man who is pure in heart and says his prayers by night, may become a wolf when the wolfbane blooms and the autumn moon is bright.


  9. #1449

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    (((Jesse))) I am very sorry to hear of your suffering. I pray for your situation to improve soon, so you are comfortable. Keep in mind that we are with you every moment and you are not carrying the load alone. May you feel comfortable with relaxed breathing and more strength in your body and mind. Hugs.

  10. #1450

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    (((Jesse)))

  11. #1451

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    (((Jesse))) Wishing you some peace and relief from the pain and distress. You are in our thoughts and prayers.
    Lady 2: there isn't anything about me on goooogle, I mean, I must take it off if there is.....
    Lady 3: The google is a terrible thing, I mean I don't want anything on there! (Overheard by millyskate on a London train.)

  12. #1452
    drinky typo pbp, closet hugger
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    (((Jesse)))
    Q: Why can't I read the competition threads?
    A: Competition forums on the board are available to those with a Season Pass or a premium membership How to View Kiss & Cry

  13. #1453

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    Jesse I'm so sorry you're going through such a painful and scary time. Of course you don't deserve it. I'm with everyone else here in hoping the transfusions bring some measure of relief and that somehow your doctors can get some good counsel from colleagues in larger centres that will help you rest more peacefully. You're in my prayers.

  14. #1454
    Registered User
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    Oh Jesse ((HUGS))

  15. #1455
    Loving on babies!
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    Clonazepam is stronger than Ativan; perhaps you can switch to that for the anxiety. Also, is the hydromorphone in pill form? Hydromorphone pills are nowhere near as effective as the IV form. If you are taking oral pain medication, methadone or extended release morphine may be an improved option over the hydromorphone.
    I am free of all prejudices. I hate everyone equally.~W. C. Fields

  16. #1456
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    (((Jesse)))

  17. #1457
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    Jesse, I'm so sorry to hear that you are experiencing such pain. I must say, I don't think the transfusion is going to be the answer. I would STRONGLY suggest that you ask to be transferred to a larger facility or hospice that has more experience with these issues. There are other drugs that can be given - but you need to have doctors who are knowledgeable and have experience dealing with the care that you need. Also, try the website www.virtualhospice.ca There is a section where you can ask a doctor or health professional - maybe they would be able to provide some assistance if the doctors in your town do not know what to do. But please, consider asking for a transfer to a hospice or larger facility that has more knowledge and experience... you will be in my thoughts...

  18. #1458
    4 More Years
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    (((Jesse)))

  19. #1459

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    (((Jesse)))

  20. #1460

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    Hi Jesse, and I haven't ready through the entire thread so forgive me if this has been discussed already, you're in obvious pain and discomfort but the doctors don't seem to be really listening to you Is there no way for you to DEMAND to be sent to the Cross Cancer Institute in Edmonton? I live in Edmonton, and it would seem to me that really would be your best bet to at least alleviate some of the extreme stress and pain that you are feeling. If this keeps happening, I would be demanding to get sent to Edmonton, with the Cross attached to the brand new state-of-the-art Edmonton Clinic, I would think that here would be the best place for you to recover, if that is an option.

    I wish you strength in this extremely difficult time.
    Kyle

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