Page 27 of 77 FirstFirst ... 17252627282937 ... LastLast
Results 521 to 540 of 1538
  1. #521

    Join Date
    Mar 2006
    Posts
    2,227
    vCash
    500
    Rep Power
    0
    Jesse, can you return the hospital bed at home and get one that works better? if it is new and you have only slept in it a few times.... It's a shame to go home and be unable to sleep!

    ETA: Or is there anything that could be done with pillows or mattresses to make it better? A good pillow or pillows makes a big difference ... but you have to try a lot of them before finding one that works for you.

  2. #522

    Join Date
    May 2002
    Location
    Canada
    Posts
    1,155
    vCash
    500
    Rep Power
    2417
    Quote Originally Posted by Spazactaz View Post
    What case manager or service providers? I'm so confused lol.
    From what I can see on the AB Health website, it looks like you should have been assigned a Cancer Patient Navigator at some point:

    Cancer Patient Navigators support clients and their families by:

    •providing accurate information for patients so they can make informed decisions about their next steps
    •helping patients prepare for tests and cancer treatments by explaining test results and treatment choices or by referring patients to other resources or services
    •improving coordination of care by working with other health care professionals
    •helping patients prepare for medical visits by explaining ahead of time what to expect
    •helping patients access financial resources and community supports
    Did this happen?
    images on ice - Figure Skating Photography

  3. #523

    Join Date
    Sep 2002
    Posts
    13,523
    vCash
    500
    Rep Power
    42165
    ^^^
    I'm glad to know that this is available, Jesse.
    If you haven't received these services, find out why, ASAP!

  4. #524
    Registered User
    Join Date
    Nov 2004
    Location
    Canada
    Posts
    1,812
    vCash
    500
    Rep Power
    1509
    I don't have any social worker. I still don't understand how that would have anything to do with a personal trip I have planned to a skating competition though?

    My internet situation... bahhhhhh!! They have absolutely NOTHING at the hospital. My uncle got me a 3G stick... which had 500 mb, which I exceeded SUPER quickly, and that was without watching ANY videos... basically just email, fsu, etc. I don't want to cost him a fortune so I try not to do a lot on it. So at home is the only time I really get to do much online.

    I'm not sure if anything can be done about this bed. It's not even the right mattress... so hopefully the air mattress that they ordered will be coming. But it's the entire bed in general that is just horrible so I will ask when the lady ever comes.

    And no I didn't receive one of those people.

  5. #525
    Registered User
    Join Date
    Sep 2005
    Location
    in the zone!!!
    Posts
    5,537
    vCash
    1654
    Rep Power
    0
    Spaz, does the hospital have free local calls? If so you can do a dial up with a local number. I spent 3 weeks in a hospital and that's what I did. If your just going on FB and here it works great!
    You should be assigned a social worker or advocate. They are suppose to help you deal with your situation. I would request a visit. If no one will help you (and for bad nursing), pick up your room phone and dial 0. Ask the operator to page the nursing super.

  6. #526

    Join Date
    May 2002
    Location
    Canada
    Posts
    1,155
    vCash
    500
    Rep Power
    2417
    Quote Originally Posted by Spazactaz View Post
    I don't have any social worker. I still don't understand how that would have anything to do with a personal trip I have planned to a skating competition though?

    My internet situation... bahhhhhh!! They have absolutely NOTHING at the hospital. My uncle got me a 3G stick... which had 500 mb, which I exceeded SUPER quickly, and that was without watching ANY videos... basically just email, fsu, etc. I don't want to cost him a fortune so I try not to do a lot on it. So at home is the only time I really get to do much online.

    I'm not sure if anything can be done about this bed. It's not even the right mattress... so hopefully the air mattress that they ordered will be coming. But it's the entire bed in general that is just horrible so I will ask when the lady ever comes.

    And no I didn't receive one of those people.
    No, the Cancer Patient Navigator won’t help you figure out how to get to Skate Canada. But what he/she will do (hopefully!) is help get the right equipment and services/supports in place so you can go home ASAP. It looks like the closest cancer facility is in Lethbridge – the Jack Ady Cancer Centre. Their number is 403-327-6840. Have a family member call (or call yourself if you can) and explain your situation and see what they have to offer. If they can’t help you, they should be able to refer you to an agency who can.

    As far getting to Saint John goes, once you get settled in at home, maybe you can look for a travel agent with some experience in helping disabled people travel? Possibly the airlines might have some helpful info too.
    images on ice - Figure Skating Photography

  7. #527

    Join Date
    Mar 2006
    Posts
    2,227
    vCash
    500
    Rep Power
    0
    It sure would help to have someone help "navigate" the health care system.
    Last edited by Spun Silver; 09-08-2013 at 06:48 AM. Reason: removed bad info

  8. #528

    Join Date
    Apr 2001
    Location
    West of the 5th...
    Posts
    29,333
    vCash
    100
    Rep Power
    41928
    Jesse's in Fort Macleod, closer to Lethbridge than Medicine Hat.
    Haunting the Princess of Pink since 20/07/11...

  9. #529

    Join Date
    Sep 2002
    Posts
    13,523
    vCash
    500
    Rep Power
    42165
    Jesse, you should have a team of people.; beginning with that specially trained social worker, to facilitate the services you need to live as you choose - and to do the things you want ti do.
    Please, ask questions about why those things have not been made available in your case, ASAP.

  10. #530
    Registered User
    Join Date
    Nov 2004
    Location
    Canada
    Posts
    1,812
    vCash
    500
    Rep Power
    1509
    I do have free local calling. I don't think my laptop has a phone jack though... and my 3G stick is probably wayyyyy better than dial-up would be anyway haha.

    I think all the different terms here are just being confused or something. There was an occupational therapist involved in getting me equipment at home. I don't know why they're having such issues with it though. My wheelchair STILL hasn't even arrived when it was promised last Wednesday at the latest.

    I really just do not want to deal with any of that though. I don't like asking any questions or talking to anyone. I woke up today in more pain than evvvvvvvvvvvvvvvver.. I always need to deal with stuff like this it seems and not anything else.

  11. #531
    Registered User
    Join Date
    Nov 2003
    Location
    neck deep & stuck fast
    Posts
    995
    vCash
    500
    Rep Power
    0
    Ugh, I'm very sorry to hear you're in pain! I hope it's being dealt with and that you are feeling better soon. I'm so sorry this is all happening to you; I can't imagine how frustrating and infuriating it must be. (((spaz)))

  12. #532

    Join Date
    Apr 2006
    Location
    Driving the Han Yan Fan Van
    Posts
    9,186
    vCash
    500
    Rep Power
    35079
    : I'm sorry today has been so rotten and that so many balls have been dropped in your care. Hoping and praying it gets better. Anyone who provides less than excellent care should be forced to wear the Ken helmet hair.
    BARK LESS. WAG MORE.

  13. #533

    Join Date
    Nov 2001
    Location
    USA
    Posts
    24,950
    vCash
    500
    Rep Power
    91872
    Pain pain go away, don't come another day (either)

  14. #534
    Registered User
    Join Date
    Nov 2001
    Age
    43
    Posts
    16,651
    vCash
    500
    Rep Power
    0
    ((((((((Spaz)))))))) So sorry about your pain and hope your wheelchair arrives SOON!

  15. #535

    Join Date
    Jan 2005
    Age
    38
    Posts
    17,618
    vCash
    500
    Rep Power
    0
    Praying for relief for you, Spaz. *hugs*
    Charter member of the "We Always Believed in Ashley" Club and the "We Believe in Ricky" Club
    Old, lonely, pathos-hungry, and extremely gullible

  16. #536

    Join Date
    Nov 2003
    Location
    NC, USA
    Posts
    16,691
    vCash
    450
    Rep Power
    7993
    (((Spaz))) You were on my mind many times today. I'm praying for relief from pain, comfort and peace for you.

  17. #537
    Registered User
    Join Date
    Oct 2004
    Posts
    321
    vCash
    500
    Rep Power
    0
    Many, many hugs for you (((((Jesse)))))

  18. #538

    Join Date
    Sep 2002
    Posts
    13,523
    vCash
    500
    Rep Power
    42165
    Adding even more prayers and support, Jesse.

  19. #539
    Thunder & Lightning!!!
    Join Date
    Mar 2003
    Location
    A tiny corner of my own mind!
    Age
    54
    Posts
    4,442
    vCash
    500
    Rep Power
    41928
    As alway...thinking and sending healing vibes your way. I hope today is a good one!
    Peace & Love, Gypsy
    Even a man who is pure in heart and says his prayers by night, may become a wolf when the wolfbane blooms and the autumn moon is bright.


  20. #540

    Join Date
    Nov 2002
    Location
    Colorado
    Posts
    5,962
    vCash
    500
    Rep Power
    7850
    I hope today finds you more comfortable, Jesse.

Page 27 of 77 FirstFirst ... 17252627282937 ... LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •