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  1. #21
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    My cousin also had a brain tumor when she was in her mid-20s (not sure if it was malignant or not). She had surgery and is fully recovered and has a 12-year-old daughter.

  2. #22

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    Anna had a good day! She was transfered out of picu yesterday to her own room. Today she ate a lot!! Which is fabulous, and she sat up for awhile, turned her head on her own, and her eyes are slowing starting to come back to the center. Her vision is still bad, but we are hoping it is just going to take time. This is the first decent news we've had in 3 weeks. Or almost 3. She will start chempo probably in a week.

    I am still trying to find out the name of the tumor. It's very rare and is associated with the pituitary. I'll try to find out what it is!

    One day at a time. Today was a good day. Thank all of you for your love and concern.

    Just sending another photo of Anna. I think it means more when you can actually see the person you are sending wishes to....

    http://www.pbase.com/rcalmes/image/123833253

  3. #23
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    could it be this one: large pituitary tumor (macroadenoma) can put pressure on the pituitary gland and nearby parts of the brain, such as the nerves leading to the eyes (optic nerves)

  4. #24
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    Is it some kind of germ cell tumor? Although they typically start in reproductive organs, they can also occur anywhere along the midline of the body, including brain. There are different cell types within that category, but many are highly responsive and curable. Lance Armstrong had brain involvement from his testicular germ cell tumor, and obviously he did really well.

    Glad to hear that Anna is doing so much better and will be strong enough to start additional treatment.

  5. #25
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    Sounding quite similar to my situation. I just turned 25... was finally diagnosed at the beginning of this year with adenoid cystic carcinoma. They found a tumor in my sinus cavity... which has spread to my brain/neck. I did radiation treatment and it apparently shrunk it only to half its size... and they say there aren't any other options for me.

  6. #26
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    Quote Originally Posted by Spazactaz View Post
    Sounding quite similar to my situation. I just turned 25... was finally diagnosed at the beginning of this year with adenoid cystic carcinoma. They found a tumor in my sinus cavity... which has spread to my brain/neck. I did radiation treatment and it apparently shrunk it only to half its size... and they say there aren't any other options for me.
    There are always options, but it is good news that you are doing well! Congrats!

    Germ cell tumors, don't those involve teeth and hair? Huh. I guess I need to get out my Neurobiology textbook again. I do know that pituitary tumors are one of the most easily treated, first of all because they manifest very quickly and are caught early and it is not as difficult to get to the pituitary.

    I have faith in medicine. She hopefully will be fine.
    I will not be ignored! -Me

  7. #27
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    Quote Originally Posted by Spazactaz View Post
    Sounding quite similar to my situation. I just turned 25... was finally diagnosed at the beginning of this year with adenoid cystic carcinoma. They found a tumor in my sinus cavity... which has spread to my brain/neck. I did radiation treatment and it apparently shrunk it only to half its size... and they say there aren't any other options for me.
    Spending you positive thoughts and energy sweetie!

  8. #28
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    Quote Originally Posted by Spazactaz View Post
    Sounding quite similar to my situation. I just turned 25... was finally diagnosed at the beginning of this year with adenoid cystic carcinoma. They found a tumor in my sinus cavity... which has spread to my brain/neck. I did radiation treatment and it apparently shrunk it only to half its size... and they say there aren't any other options for me.
    I'm so sorry. It's so hard, especially when you're young, to hear a diagnosis like that. Did it have anything to do with the terrible nosebleeds you were having earlier this year?

    My coworker was finally diagnosed, after months of debilitating abdominal pain (as well as a round of severe jaundice), with stage 4 pancreatic cancer. The cancer is continuing to spread, even after a month of the hardest chemo regimen they have. There are "too many lesions in the liver to count," and now it's in his spine too. Last we heard, they were gonna continue chemo. Presumably with different drugs. He's 30. I mean, just what else is there to do? Our only solace is that he's at home in France with his family, and the painkiller cocktail he's getting is working really well, so he's in minimal pain. He was hospitalized several times when he was still in the States earlier this year and it was terrible to see him suffer so much.

    Since your tumor responded to radiation (one type? Multiple types?), I still say there is hope. Is chemo on the table? Some kind of drug cocktail? Clinical trials? You're young, and in good shape. It's too soon to give up.

  9. #29

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    Quote Originally Posted by tarotx View Post
    Spending you positive thoughts and energy sweetie!
    Joining in; and sending more of the same, Spazactaz!

  10. #30

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    Quote Originally Posted by Spazactaz View Post
    Sounding quite similar to my situation. I just turned 25... was finally diagnosed at the beginning of this year with adenoid cystic carcinoma. They found a tumor in my sinus cavity... which has spread to my brain/neck. I did radiation treatment and it apparently shrunk it only to half its size... and they say there aren't any other options for me.
    ((((((((((Spaz))))))))))
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  11. #31
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    ((((((Spaz)))))) You have my heartfelt wishes for a positive outcome, and I hope you will be able to apply the same determination, perseverance and great attitude that has allowed you to be so successful in skating to your disease and that you will beat it.
    "I miss footwork that has any kind of a discernible pattern. The goal of a step sequence should not be for a skater to show the same ice coverage as a Zamboni and take about as much time as an ice resurface. " ~ Zemgirl, reflecting on a pre-IJS straight line sequence

  12. #32
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    Keeping you in my thoughts and prayers, Spaz.

  13. #33

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    Love and prayers Spaz...I want to meet you at Adult Nationals!
    "awwww....shades of Janet Lynn" - Dick Button on anyone who makes more than one mistake in their program.

  14. #34
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    (((Spazactaz and Anna))) Keeping you both in my thoughts and prayers.
    Angie
    “I have not failed. I’ve just found 10,000 ways that won’t work.” ~ Thomas A. Edison

  15. #35
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    Quote Originally Posted by Anita18 View Post
    I'm so sorry. It's so hard, especially when you're young, to hear a diagnosis like that. Did it have anything to do with the terrible nosebleeds you were having earlier this year?

    Since your tumor responded to radiation (one type? Multiple types?), I still say there is hope. Is chemo on the table? Some kind of drug cocktail? Clinical trials? You're young, and in good shape. It's too soon to give up.
    Yes it did! I should've updated you all here, as so many of you were supportive at that time. The doctors here kept telling me it was just dry air, etc... so I went to a different city to see a specialist. He put the camera up my nose and in 5 seconds found the tumor!! Thought it would be benign... took out a few chunks for a biopsy, wasn't that lucky.

    It's a slow growing cancer so apparently chemo would do nothing for it... and since it has spread he said surgery is not an option, so idk. :S the radiation was the worst experience of my lifeeeee. I went 3 months with no food... having to shove a straw down my throat and force myself smoothies. horrrrrrible!

    Quote Originally Posted by skatemommy View Post
    Love and prayers Spaz...I want to meet you at Adult Nationals!
    I might be absolutely insane, but if I have it my way I will trying for regular nationals! haha. I skated yesterday and did a double sal... so it gives me 1.5 months until sectionals to at least get up through triple lutz back. impossible probably, but we'll see. :p

    and thanks so much, all of you! <3

  16. #36
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    Quote Originally Posted by Spazactaz View Post
    Yes it did! I should've updated you all here, as so many of you were supportive at that time. The doctors here kept telling me it was just dry air, etc... so I went to a different city to see a specialist. He put the camera up my nose and in 5 seconds found the tumor!! Thought it would be benign... took out a few chunks for a biopsy, wasn't that lucky.
    Damn.

    Yeah in hindsight, my friend was showing some of the classic symptoms of pancreatic cancer, but because of his youth and complete lack of risks and family history, the doctors refused to say it was cancer. Only until they had crossed everything else off, did they really start considering it. Not that it helped, since he had a ton of scans looking for digestive issues and they didn't see anything until it had already spread.

    Quote Originally Posted by Spazactaz View Post
    It's a slow growing cancer so apparently chemo would do nothing for it... and since it has spread he said surgery is not an option, so idk. :S the radiation was the worst experience of my lifeeeee. I went 3 months with no food... having to shove a straw down my throat and force myself smoothies. horrrrrrible!
    Yeah from what I heard from my friend, chemo is no fun either. He still has his hair, but lost a ton of weight from his already thin frame.

    It's good that it's slow-growing, but it sucks that they can't take it out. Is it really gonna be touch-and-go at this point?

  17. #37
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    It's so sad that they never take young people seriously. I was going in all the time, going to the ER, etc... something was WRONG and I knew it! But they just kept telling me "you're young and healthy" and brushing me right off. I am sooooooooooooooooooo frustrated with doctors. They still give me zero answers and don't care about any of the problems I'm having.

    But yeah.. they're just going to keep doing MRIs apparently to monitor me and see how fast it's growing or whatever.

  18. #38
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    My very best wishes to you Spazactaz, especially with your skating. xox
    Dont Hate! Gyrate!

  19. #39

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    ((((Spazactaz))))

  20. #40
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    Best wishes Spazactaz. Hope you make it to Nationals. I'll be cheering for you!

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