Listen to your doctors. If they say rest, REST.
I had/have ITP, an autoimmune illness. Between how sick I was from it, and needing to be treated with high-dose prednisone for it, I basically couldn't do anything. And for the first month or so I wasn't SUPPOSED to.
Exercise isn't going to fix nerve damage, and while it might help muscle atrophy, it could make matters worse. Talk to your doctors once they have a diagnosis and ask what you can and should be doing in terms of exercise. Then listen to them. You don't want to make yourself sicker or hurt something because you're pushing too hard and aren't fit.
I'm so sorry, hanca. I agree with danceronice - listen to your doctors and do what they say. You don't want to make anything worse. If you were in good shape before you got sick, you'll be able to get back when you're recovered. Right now, the most important thing is to get well.
- Rep Power
REST!!! I have MS which has similar symptoms to Guillain-Barre but never goes away. Until you know what is causing these issues, rest. Take time away formthe ice as you only cause more problems with whatever you have.
Fingers crossed it's something trivial....
Originally Posted by hanca
Listening to a doctor is a bit difficult. I went to GP four times, they did not know what was wrong with me, so he told me that he would refer me to neurologist. When I went there a few days later because the symptoms got worse, I found out that the referal has not been done yet. In the end I went to neurologist privately to avoid waiting up to ten weeks to see the neurologist.
The private neurologist sent me straight to hospital for the tests.
While I was in hospital for the tests, I did ask about exercising and they told me something like "do as much as you can. Exercise is helpful but don't over do it". Which doesn't really say much.
Now the tests are coming in about 4 weeks, but because I can't keep going to the private neurologist (it is £250 per visit) I am waiting to get appointment on NHS neurologist. I got a letter from hospital to phone and make an appointment. I phoned there and they told me that they have no appointments at the moment; apparently to meet their targets I have to be seen within 10 weks from the time the referral was made (when I was in the hospital for the tests) but as they don't have the date, they will phone me when they have some cancellation.
At the moment it feels that no one (from medical profession) gives a sh..t. I am not sure if going back to GP can sort anything out, considering that I have been there 4 times, saw 4 different doctors and they did not have a clue; I don't know when I get my appointment to the neurologist. I feel I have to do something but not sure what.
When I was in the hospital, they told me that if it is the Guillain–Barré syndrome, that it will go away eventually and that there is not much they can do (except of giving me painkillers). Apparently it is a matter of months. I don't know, maybe I should be happy that if I have this (which I don't have confirmed yet), I will be fine in a few months, but somehow I just can't be happy about this. What is ' a matter of months'? Are we talking about 3? Or 6? Or 9?
The must be SOMETHING I can do! I just don't know what.
- Rep Power
no..there really isnt anything which is the hard part. Your body needs to rest so it can heal. If you can walk, walk short distances. Avoid the heat, avoid working to hard. My first symptoms of MS started with a numb finger and not feeling well, and then really progressed until i was in a wheelchair. I'm find now but I learned a lesson about not overdoing it as I had started to heal but decided to go on a huge shopping trip with lots of walking and ended up back on my back so to speak.
I skate now so i understand you wanting to skate, but it is dangerous is you are uncoordinated, cant feel parts of your body, etc...