Discussion in 'Off The Beaten Track' started by Spazactaz, Aug 15, 2013.
This! ^ xoxoxoxoxo today Jesse!
Good morning Jesse, how did you sleep last night? Have they managed to improve your pain medication?
You spoke for me.
Holding you in my thoughts and prayers. As one who has walked this road with dearly loved family members, please know that there are many supports available to you. Ask for support - from the hospital, from the cancer programs - they don't always think to offer it. They have counsellors, pastors, etc... who can surround you during this time. And, I have to honestly say, the greatest support we received was from the Palliative Care Program. It's hard - my family was not ready for it - but I insisted on accessing services and they were wonderful - from emotional support to pain management... Palliative care is not just for the final stages, they can be very helpful even while still seeking treatment. Hugs to you - God Bless.
My thoughts and prayers are with you. I hope that you are getting all the pain relief that you need. I am going to PM you.
((((Hugs)))) My prayers and thoughts with you.
Just wanted to send you a smile or two
Still surprised that Spazactaz is a dude. Give Porki a big hug for me next time he visits and know we are all praying for you.
Sending more support to you.
Worried that we haven't heard from Jesse today. I hope he isn't having a bad day .
He may be sleeping.
Or too busy charming the nurses to have time to post.
(Hope today is a better day for you, Spaz.)
He posted on Facebook a couple of hours ago...it was a tough day. As of now, he is being moved to Fort MacLeod Hospital on Friday, so thankfully, he'll be close to family.
Thanks for the update Kim. ((((Jesse))))
Still sending prayers and positive energy your way. Now that you are being moved closer to home, hope you can see your parents, friends and doggie more often. I'll send them positive energy to be strong as your support.
Being closer to family is good. (((((Jesse)))))
It will really help his parents. They were driving 2 hours (each way?) every day to Calgary to be with him.
Hi Jesse. Hope you are doing better every day and having wonderful dreams of landing triple axels and doing those gorgeous spins of yours!
Sending continued healing thoughts an prayers your way (and to your family & Porki too!!!)
Good morning Jesse. Hope the move was not too stressful. But, now you are closer to your family, friends, and Porkie, that is good. Hope you're pain level is lower. Hope to see you posting here hen you feel up to it. Sending hugs and get well prayers.
Two more days and then you'll be closer to home, family, friends and your puppy! I hope the transport happens with a minimum of pain and having all your loved ones with you brings you more rest and comfort.
Seconding the above post.
Good morning, Jesse. I hope you had a restful night. I hope you have a better day than yesterday.
Yeah the tentative plan is to send me via ambulance on Friday to the hospital back home.
I've just still been soooo exhausted. Physio kills me. For some reason I can't sleep either. The pain has been a bit better. Today is my last radiation treatment!! It will be my 53rd total I believe... insane!
Thanks again for all the continued awesome support! <3
You are more than welcome, Jesse.
I wish that I could do more.
Something you mentioned in your first post caught my attention: "The doctor says I have "months" to live." Well I say, don't accept this! As I've come to learn all too well in my own life, doctors most definitely are not Gods. For example, thirty years ago, when I was twenty-nine, a doctor solemnly announced that I would need a Pacemaker within three years. Thirty years later, no pacemaker, and my heart is fine. (As for my mind...well, that's another story! )
I've also heard countless stories throughout my life of very ill people who had "only months to live," but who recovered and went on to live full, long lives.
For example, I know of a lady who suffered a massive stroke at age thirty-two. Her prognosis was grim. However -- she DID recover, and went on to live a completely normal life, only finally passing away fifty-nine years later, at age NINETY-ONE.
My hope for you, then, backed up by the very real possibility, is that you will be posting on FSU about the ISU (Interplanetary Skating Union) near the end of this century.
for the end of radiation!
Hate that feeling of being exhausted and yet not able to sleep (of course, it's hard to sleep in a hospital, so. . . . ). Hoping the move is smooth and you'll continue to feel less pain and enjoy friends and family more.
I hope you didn't mind me updating your worried "mother hens' upthread, Jesse, but I'm sure there are times you just get tired of talking about it, and I know you need to rest....you have a birthday party to plan, donchaknow?
Sleeping in hospitals is next to impossible. I spent a lot of time in one myself over the past fall/winter and everything from the awful plastic mattresses, to nurses coming to check on me, to other patients kept me from sleeping. I'll be keeping my fingers crossed that they kick you out of your home town hospital really quickly because I'm sure your own home is where you'll rest the best!
Hello Jesse, Thank you for posting again today. Good to hear from you. You continue to be in all our thoughts. Hope you have the energy to do something that would be pleasant, like watching your fave skaters on YT or playing with the doggy when you see her again.
Sending my thoughts to you as well Jesse. I hope you are able to find some pain relief and sleep so your body can continue to fight. You must be so happy to be going closer to home and of course Porki!
Cancer is such an evil bastard. Le sigh.
Hey Spaz. I'm so glad that you will soon be closer to home. You will definitely be in a 'TGIF' mode at the end of this week if your transfer goes through.
Today I've had the 2 worst nurses during my entire 10 days here so far. I fought with this older male one the entire time... and kept telling him to STOP moving me without even telling me etc.. because that's what sends me into excruciating pain, but he just wouldn't stop.. he was soooooooooo rude. And now I have another absolutely terrible one. I just can't handle being so frustrated all the time ahhhhhhhh /rant.
And no worries Kim about updating for me.
BittyBug your flowers are awesome! <3 No idea what to expect of the hospital at home but I just hope it's anything better than this!
Thank you allll!
ETA - I may not have internet after tonight.. it expires at midnight, so depending on if the volunteers are around tomorrow to get me a new username/password that may be why there's no other replies from me for a while!
Sorry the nurses today have seems so uncaring. Compassion should be top of the list for all nurses. It's not an easy job but there is no need to be rude to patients. I hope you get the internet sorted out for post midnight. Hoping you get some much needed rest tonight Jesse
Sending more positive thoughts your way. Our collective wish for you includes pain relief and better sleep and much better medical staff -- please let us know, if you can, how things go at your "close to home" hospital. Can you feel any benefit from the physical therapy? Sometimes, pain means gain, but sometimes pain is just pain. I sure hope there is a strong benefit.
What can we do for you? Anything you need or want? Calls, letters, info, stuff, or just messaging through FSU. Please don't hesitate to ask!
(((((((( HUGS )))))))) to you, Jesse!!!!!!!
I've been calling for help for over 2 hours now and my nurse just won't come. This sucks so bad.
Otherwise nothing I can think of that I need or want though.
Oh, hell! I wish I were there to go get them for you. This must be the hardest time to get their attention. : (
I found your thread by accident - I never read this part of the forum - and was terribly sorry to learn of your situation. You are so honest and brave and, as others have said, such a gifted skater. I am praying as hard as I can for your full recovery and meanwhile for relief of your pain and the spiritual strength to deal with all this - I am a Catholic and am calling on a lot of great saints and blesseds to pray for you too!
Jesse, I am so sorry you have to deal with this, on top of everything else. Is there a way for you to tell the doctors or the nurses' supervisor?
Hopefully you get some compassionate nurses tomorrow.
Please know that you can absolutely refuse treatment from a specific personnel at any time, ask for a specific nurse or doctor not to treat you again, and request a different one. Your hospital should have a patient advocacy department to help you deal with things like this.
Hang in there, Jesse.
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