My cancer situation

Discussion in 'Off The Beaten Track' started by Spazactaz, Aug 15, 2013.

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  1. Spun Silver

    Spun Silver Well-Known Member

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    Wyliefan, thank you for posting that breath prayer link. I need that myself and I also sent it to my sister who just found she has a heart condition. What a great idea - prayer "so simple a child could do it"!

    Jesse, wishing you breath indeed. You are always in my heart. ((( )))
     
  2. orientalplane

    orientalplane Mad for mangelwurzels

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    Wishing you comfort and peace, Jesse.
     
    Vash01 and (deleted member) like this.
  3. LilJen

    LilJen Well-Known Member

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    Jesse, in my fantasy world I have bucketloads of money. With this, I procure you a private room, your own private nurse, a paid health advocate who will bully (but kindly) the medical staff into paying attention to you and doing EVERYTHING needed to make you comfortable, and the best bed and wheelchair ever, with all the bells and whistles. Echoing everyone who sends you comfort, peace, virtual hugs, and wishing we could do more to help than virtually supporting you.
     
  4. skatesindreams

    skatesindreams Well-Known Member

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    ((((Jesse)))))
    Adding my thoughts and prayers to all those already here.
     
  5. Vash01

    Vash01 Fan of Julia, Elena, Anna, Liza, and Vera

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    Good morning Jesse. Wish you a comfortable day. Hugs
     
  6. Rock2

    Rock2 Well-Known Member

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    I second this. It's tough when you're not well to have to advocate your own health care so much. If you were closer I would have been happen to dart into the hospital occasionally to get you what you need even if it means they give it just to get me to go away :)

    Never stop asking. I'm trusting someone will come through.
     
  7. victoriajh

    victoriajh Well-Known Member

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    thinking about you today jesse-
    hope today brought you some comfort peace and joy =)
     
  8. Buzz

    Buzz Well-Known Member

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    Wishing you a good night's sleep and a pain free day tomorrow.
     
  9. brina

    brina Well-Known Member

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    You are in my thoughts and prayers, Jesse.
     
  10. Spun Silver

    Spun Silver Well-Known Member

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    Jesse, I know you are having a hard time. May you breathe deeply and peacefully tonight. May you be cared for gently and wisely tomorrow. We all send you love and prayers in our different ways.
     
  11. skateboy

    skateboy Well-Known Member

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    Wishing you strength and pleasant dreams of fully rotated and perfectly landed quad jumps, Jesse!
     
  12. Japanfan

    Japanfan Well-Known Member

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    Jessie, why isn't anyone advocating for you, and why are your caregivers not doing more? I apologize if someone is in fact advocating for you, but I don't get the impression that that is the case?
     
  13. Spazactaz

    Spazactaz New Member

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    A new worst day of my life. :(
    Woke up in an extreme panic attack because I was suffocating SO badly.
    Ended up getting a blood transfusion. Suffocating has continued ALL day however and I am just absolutely terrified because it feels like I'm dying at any moment.
    If this doesn't work some sort of miracle and pronto I don't know how I can last much longer, this is the worst torture I've ever experienced and I don't know what to do. :( :( :(
     
  14. skateboy

    skateboy Well-Known Member

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    Have doctors specifically addressed this suffocation feeling, Jesse? (Or maybe the blood transfusion was addressing that.) I can only imagine how terrifying that feeling must be. There has to be something that can be done, there just has to!

    So sorry!
     
  15. Spun Silver

    Spun Silver Well-Known Member

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    They think the breathing issues are caused by low hemoglobin and finally, finally got around to giving him the transfusion. Another one tomorrow. He is in a tiny hospital in a tiny town. There are only three doctors in the whole town. They dont know what to do for him...

    Jesse, you are NOT alone. Remember us and all your friends - with you in spirit all the time, loving you and sending prayers for relief and strength.
     
    Last edited: Nov 5, 2013
  16. Spazactaz

    Spazactaz New Member

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    The transfusion is the only real option, otherwise they just address it by giving me hydromorphone and ativan pills, which have seemingly done nothing at all.
    I would also think there has to be something that can be done but it's just not seeming like it... and I don't see how they can allow me to sit in this agony... it is TORTURE and I don't deserve it. It's not worth being alive for at all.
     
  17. Lanie

    Lanie Well-Known Member

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    I'm so sorry you're dealing with this, Jesse. I am furious at the horrible care you have been getting. :( I wish there was something we here at FSU could do for you besides just say we're all here for you.
     
  18. skatefan

    skatefan Well-Known Member

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    :fragile: Tears for you Jesse, I am so very sad to read your post and wish so desperately that there was something I/we could do which would help with your suffering. Is there any way your parents or doctors could find out what is the best form of pain relief for your condition? via the internet I'm thinking or by calling someone with expertise in pain relief?

    Is there an hospice facility which you could go to - the nurses and doctors there are specialists with regard to pain relief and I know from personal family experience that they can be incredibly helpful to families.

    We are thinking of you Jesse and you are in our prayers.
     
  19. spikydurian

    spikydurian Well-Known Member

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    Spaz...((((())))))
     
  20. Finnice

    Finnice Well-Known Member

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    ((((Jesse)))) Praying for the pain to ease.
     
  21. Buzz

    Buzz Well-Known Member

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    (((((Jesse)))))). May God bless you and give you the strength to overcome the daily pain and suffering. You are my thoughts and in my prayers.
     
  22. rfisher

    rfisher At least I still have Pairs to look forward to

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    Jesse, I'm sorry.
     
  23. fscric

    fscric Active Member

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    Lots of love and hugs for you, Jesse.
     
  24. backspin

    backspin Active Member

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    Is there any option of moving to a larger facility? I know it would put you farther from home, but if more could be done for you.....

    I'm so, so sorry to hear how you're suffering!! :(
     
  25. Sylvia

    Sylvia Worlds is HERE & NOW!

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    I'm thinking of you, Jesse. {{{ Jesse }}}
     
  26. orientalplane

    orientalplane Mad for mangelwurzels

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    How I wish we could take your pain and distress away. :(
     
    Last edited: Nov 5, 2013
  27. LilJen

    LilJen Well-Known Member

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    Ditto. (((((((((((((((((((Jesse))))))))))))))))
     
  28. Wyliefan

    Wyliefan Well-Known Member

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    Jesse, we care about you and we all wish so much that we could help. Praying that God will bring you relief and peace.
     
  29. purple skates

    purple skates Shadow dancing

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    (((Jesse)))
     
  30. cruisin

    cruisin Banned Member

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    I don't understand why transfusion is the only option. Do they hear fluid in your lungs? If so, would a diuretic help? Ativan is pretty strong. It's not helping with your anxiety?

    Jesse, I am so sorry that you are suffering so much. I don't know what to say, except we all care and wish we could perform a miracle for you. XOXO
     
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