My cancer situation

Discussion in 'Off The Beaten Track' started by Spazactaz, Aug 15, 2013.

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  1. skateycat

    skateycat Minecraft Widow

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    I will send you some postcards when you post your name.

    And what does your screen name mean?

    :eek: I thought your screen name was Spazcataz, and I was wondering why everyone was spelling it wrong. Doh! :eek:
     
  2. BittyBug

    BittyBug Kiteless

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    I'm sorry today was so difficult, but I hope tomorrow will be a better day.
     
  3. Really

    Really No longer just a "well-known member" Yay!

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    For anyone who's not sure, Spaz's address is in Canada.

    {{{{Spaz}}}}....I hope tomorrow is a better day!
     
  4. orientalplane

    orientalplane Mad for mangelwurzels

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    I hope you're not suffering so much pain now. It's great that your family are supportive and that they brought in your puppy to give you some cheer. :) Hopefully you'll be able to get some sleep as you're so tired, and please post anything you want if it will help even a tiny bit. Everyone here is thinking of you. (((Hugs for Spazactaz)))
     
    alilou and (deleted member) like this.
  5. floskate

    floskate Vacant

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    {{{{Spaz}}}} I'm just so desperately sorry to hear this. :( I'm praying for you and sending as many virtual hugs as you need.
     
  6. halffull

    halffull The most wonderful time of the year :)

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    Sorry to read you are in such pain but glad you had a visit with your family and puppy :) Hoping you have a less painful day today!
     
  7. allezfred

    allezfred Old and Immature Admin Staff Member

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    Spazactaz, I'm so sorry to hear about what you're dealing with and hope you'll be able to get some relief from your pain.
     
  8. skatesindreams

    skatesindreams Well-Known Member

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    Is a pain management specialist available to you?
    Ask about this.
    Much can now be done to relieve suffering without "doping" you.
     
  9. cruisin

    cruisin Well-Known Member

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    (((Spazactaz))) I am so sorry that you are going through this. There are no adequate words to express how sad I am, for your pain. I am sending hugs and prayers that each day is a day with less pain.
     
  10. TalentedButHumble

    TalentedButHumble Well-Known Member

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    Adding my virtual hugs. I know you must be experiencing intense emotions, and the shock etc. for you & family - as well as your physical discomfort - is making it difficult to focus. I'm thinking about who you can get to both help you with all the practical questions and offer emotional support. Can the hospital refer a social worker/"point person" to help you and your family? To put it in FS terms, you need a coach or coaching team!

    And perhaps others here will continue to have suggestions about online resources.

    In the meantime, another JW performance.
    http://www.youtube.com/watch?v=3Um3H7Qjxh0
     
  11. Spiralgraph

    Spiralgraph Active Member

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    I'm really sorry you are in pain and suffering. I'll keep you in my prayers as well, and I hope you continue getting lots of support from your family and friends and your doctors.
     
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  12. Spazactaz

    Spazactaz New Member

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    My name is Jesse Smith. And yes in Canada.
    My parents are about 2 hours away from me right now. They've been driving in every other day or so to see me which has been nice. My puppy is a yorkie. Her name is Porki. :)
    My screen name doesn't really mean anything... someone suggested it to me well over 10 years ago and I just liked it. :p
    The pain is even worse today... so excruciating I can't handle it. They do have several pain people working with me trying to get it sorted out but it just seems like absolutely everything they try does nothing. I'm on SO many meds it's crazy... I don't know why they seem to have no effect on me. :(
     
  13. rfisher

    rfisher Satisfied skating fan

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    There's a fine line between keeping you lucid and keeping you pain free. Sometimes it takes a while to find the precise combination. Hopefully, the radiation therapy will begin to reduce some of the tumor swelling which should help with pain management. You might try some relaxation techniques to see if it will help you. Slow deep breaths when the pain is most intense. Your muscles tense against the pain which results in a cascade effect. It's not easy, but maybe if you try to focus on breathing through the pain it will help. Have your physicians discussed a morphine pump with you? This would allow you to keep your pain medication at an even level so you don't experience highs and lows. Addiction is not your biggest concern at this point. Distract yourself as much as possible. And Porki the Yorkie is too cute. :lol:
     
  14. cruisin

    cruisin Well-Known Member

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    Is there somewhere your parents can stay, so that they don't have to travel? I wish I could reach through the computer and hug you. Would a psych consult help you to mentally manage the pain (emotional and physical)? You're such a young man, this is so unfair.
     
    Last edited: Aug 17, 2013
  15. BittyBug

    BittyBug Kiteless

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    That is just perfect. :)

    Ugh - pain management can be so elusive so I hope they sort out your situation quickly. A friend of mine was in a very bad car accident that left her with extreme and persistent pain that didn't respond to meds. She now has this weird thing that I understand as sort of an implant that she activates to zap a little electrical current through her system that seems to help much more than the meds ever did. (That's my very lay person understanding but I guess the current interrupts the pain signals to the brain and provides relief that way.)

    I guess it's something like this. From a quick search it seems like TENS is just being explored as a pain management tool for cancer patients so there is no standard protocol yet but maybe it's something you could ask about if meds aren't helping? In the meantime, we are all sending healing vibes your way.

    (ETA: Here is a recent study on the efficacy of TENS for cancer patients that ultimately recommends it.)
     
  16. Anita18

    Anita18 Well-Known Member

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    Yay Porki Yorkie!

    Pain is this crazy thing. What works for one person may not work for another, and stress certainly doesn't help. :( Keep on the nurses and doctors to try new things, though. There has to be a combination that works.

    Spaz is a dude. :) He's posted vids of himself skating - your combination spin here is GORGEOUS! http://www.youtube.com/watch?v=6RMmBbMShcU

    And this is a hopeful song Spaz skated to that maybe we all need right now: http://youtu.be/DFxBWcJQbcA
     
  17. Clarice

    Clarice Active Member

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    Spaz, those videos are awesome!

    I'm sorry you are suffering so badly. My prayers today are that the doctors find something that can manage your pain, and find it quickly. I hope Porki can come visit often - I know that whenever I'm feeling bad, holding and petting my little Maltese Zamboni helps a lot.

    Don't stop believing, my friend!
     
  18. Moto Guzzi

    Moto Guzzi Well-Known Member

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    I'm sorry you're having so much pain and hope your doctors will soon find something that will give you relief.
     
  19. cruisin

    cruisin Well-Known Member

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    Yes, thankfully, I had a PM correcting me. Thank you too. I had never seen his videos, thank you for posting them.

    Jesse, you are amazing! In every way.
     
  20. JasperBoy

    JasperBoy Heading for Helsinki

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    This is really bad news, Jesse. I am happy to recall that you got to London to see the Worlds. We didn't know that you were ill at that time.

    I hope they are soon able to come up with the right pain meds to give you comfort. It is hard to be rational when overwhelmed by pain.
    My good thoughts and wishes join those of the rest of the FSU family in wishing you freedom from fear and pain. ((Jesse))
     
  21. DaveRocks

    DaveRocks Well-Known Member

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    Jesse: like kimkom said, I'm so glad that you posted here on FSU. Big, big hugs, my friend. I had a blast sitting with you in London at Worlds. It was great snarking about lots of the skaters with you! ;) Know that I'm thinking of you. Lots of positive vibes are being sent.
     
  22. Gazpacho

    Gazpacho Well-Known Member

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    Jesse, does the address you provided accept flower deliveries? I wasn't sure because it said Box 2145, and in the US, most postal boxes would not accept flower deliveries.
     
  23. Lacey

    Lacey Well-Known Member

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    Jesse, I love the name Porki the Yorki, I hope he/she can visit as much as possible, and your parents too., you don't want to be alone.
     
  24. Japanfan

    Japanfan Well-Known Member

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    Jesse, I hope you find some peace of mind and comfort, and relief from your pain. I cannot imagine what you are going through emotionally and physically. You must feel incredibly ripped off. I wish I had some wisdom to share about how to deal with that, but I don't. If you are able to find wisdom and courage within yourself, there are many on this board and in the world at large who would benefit if you would share it.
     
  25. chipso1

    chipso1 Well-Known Member

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    Thinking about you, Jesse. :( Sending lots of prayers and good vibes your way!
     
  26. pat c

    pat c Well-Known Member

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    I hope that something helps you Jesse. Cancer is a real sob. What hospital are you in? ((((((((hugs))))))))
     
  27. Holley Calmes

    Holley Calmes Well-Known Member

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    My goodness Jesse! I really enjoyed those skating vids. Are there more? Well, big hug goodnight from me here. Praying for you.
     
  28. victoriajh

    victoriajh Well-Known Member

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    WOW just saw the vids- Spaz- you have such fabulous lines! SO lovely to watch=) my daughter has drawn you some pictures that I will get in the mail for you - (for you skating friend who is sick- said she)
     
  29. Really

    Really No longer just a "well-known member" Yay!

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    {{{{Jesse}}}} I told my daughter about you today. She's a few years older than you, but she remembers you skating at the Central Region Open in Ponoka a number of years ago. She sends her good wishes for you.

    I hope the docs are able to come up with the right combination of meds to make your pain manageable. My heart goes out to you -- I can't begin to imagine how difficult this is for you, and your family, especially making that two-hour trek. Ask if there are any rooms available in the hospital for them to 'rent' -- when my husband had his heart surgery last December, the U of A hospital had a few rooms that weren't being used and were available for patients' families to rent. I'm guessing you're in Calgary, but I don't know what's available at the hospitals there.

    I hope tomorrow is a better day...
     
  30. barbk

    barbk Well-Known Member

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    I hope the pain consult comes through quickly. Is hospice an option in Canada? (They did a far better job addressing my dad's cancer pain than did the hospital.)

    I'll join in the hope that tomorrow is better.
     
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