My cancer situation

Discussion in 'Off The Beaten Track' started by Spazactaz, Aug 15, 2013.

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  1. LilJen

    LilJen Well-Known Member

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    Also thinking of you, praying for healing and that your spirits would be good even when you're feeling rotten.
  2. Kasey

    Kasey Loving on babies!

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    Perhaps taking the antibiotics, whether you like to take pills or not, may improve your overall wellness, feeling stronger, and improved sleep? I don't know if they are still for the pneumonia; but not completing a full course of antibiotics can cause a rebound infection, and make you more prone to having a bacterial strain that is more resistant to antibiotics afterwards. when your immune system is already compromised, not following the protocols, even if you don't like taking meds, isn't always the best answer
    numbers123 and (deleted member) like this.
  3. skatesindreams

    skatesindreams Well-Known Member

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    Seconding the advice crusin and Kasey have shared, Jesse.
    I wish that we could do more to help you.
  4. shan

    shan Well-Known Member

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    (((Jesse)))
  5. Anita18

    Anita18 Well-Known Member

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    I agree that staying on the antibiotic regimen would be the best course, if your doctors feel you need them. Not all antibiotics are pills - could you ask for them in IV form?

    You're probably in no state to ask for (or comprehend) complicated explanations from your doctor, but is anyone there to help you figure out why he wants you to stay on them? You deserve to know.

    I know we keep pestering on this, but we all feel so helpless being far away, and we care about you and it hurts to hear of your troubles. :csad: ((Jesse))
  6. cruisin

    cruisin Well-Known Member

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    Kasey, so glad you pick up on this. You explained Jesse's need to stay on the antibiotics far better than I did.
  7. yfbg722

    yfbg722 Active Member

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    Hey Jesse, so sorry to hear that you're feeling crappy but I'm with all the other momma bears on here. You need to take the meds. I know it's tiresome always having to take medication but it really will help you feel better in the long run and you really don't want to let pneumonia get out of control. I spent some time dealing with infection last fall. It took several tries and an infection specialist to finally figure out the right medication to get me well but once they did I felt so much better and was able to leave the hospital. I hope the same will happen for you.
  8. Really

    Really No longer just a "well-known member" Yay!

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    (((((Jesse)))))
  9. spikydurian

    spikydurian Well-Known Member

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    Spaz, rest well and hope you managed some good sleeps every night. (((()))))
  10. backspin

    backspin Active Member

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    Hugs and prayers for you Jesse. I hope you are comfortable and able to rest.
  11. Spun Silver

    Spun Silver Well-Known Member

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    Jesse, please remember our love and support when you are feeling down. You are not alone even if we are far away.

    Sending prayers for rest tonight and strength tomorrow. xoxo
  12. Spazactaz

    Spazactaz New Member

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    He said he wanted me on the antibiotics indefinitely which is why I said no.. I don't want more pills that I'm on forever. It kills me trying to swallow them, and there are no other good options to get them down.

    Haven't slept at alllllllllllll lately because every time I go on my side I break out in the worst sweat and then my entire bed is soaked. :(
  13. skateboy

    skateboy Well-Known Member

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    Oh, I'm so sorry you're having such a tough time right now, Jesse.

    Out of curiosity, does the sweating occur because your body is overheated, or does simply turning on your side activate the sweat glands? (Sorry if I'm being nosy, you don't have to answer that if you'd rather not. :))
  14. Japanfan

    Japanfan Well-Known Member

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    Oh no. To me there are few worse things imaginable than having compromised health, being in pain and discomfort - and on top of that, not sleeping.

    I'd be screaming for sleeping meds, myself. But I'm guessing you don't want to take them?
  15. Vash01

    Vash01 Well-Known Member

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    Jesse,

    I know it sounds really bad when a doctor wants you to take medicines indefinitely, but it may at least control some things that are happening right now. Also it does not necessarily mean 'forever'. If you get better and stronger, the doctor could make a change, like reduce the dose or eventually stop it. He just cannot put a date or a number (of pills) on it right now. BTW did you mention to the doctor that it's really hard for you to swallow the pills? What did the doctor say about your sweating? I hate to mention the word 'medicine' again, but may be there is something that can make you comfortable.

    Sleep well tonight, and wake up refreshed tomorrow. Hugs.
  16. barbk

    barbk Well-Known Member

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    Hi Jesse,

    I'm up late, but I hope you're finally catching some sleep. How's your little Porki doing?
  17. cruisin

    cruisin Well-Known Member

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    Jesse, please mention to the doctor that it is hard for you to swallow the pills. There may be a liquid option. Or they might be able to make a slurry out of the pills. Another trick is to swallow the pills with a bit of food, like a small bite of banana, rather than water. I know you've lost your appetite, but I am really worried that you may be slowing down your wellness.

    Lecture over, :)

    I'm so sorry you're not sleeping, that is the worst! How is the pain, right now? Is it any better? XOXO
  18. skatesindreams

    skatesindreams Well-Known Member

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    Jesse, talk to your doctor/medical team about all of these issues.
    They can help find ways for you to take medications effectively; and make you more comfortable.
    There are options besides pills.

    Sending encouragement and support to you, as always.
  19. KCC

    KCC Active Member

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    Jesse, do what you can, and get your rest. You sound so exhausted in your notes to us -- but, we do love getting your messages! Know that you have a large community here cheering for you.
  20. Vash01

    Vash01 Well-Known Member

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    Good morning Jesse. Wish you a good day. Hugs.
  21. Rob

    Rob Beach Bum

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    I hope you are getting some sleep Jesse!

    I can't tell you what to do because it is your decision entirely -- but I can tell you about my own experience with lung infections. I have asthma so if I get a cold/flu it gets down in my lungs, and I am prone to pneumonia if get that kind of infection. Earlier this year, I had bronchitis, asthma, pneumonia, a severe throat irritation, and a collapsed lung in the space of a month. I needed to cough to get it all moving out, but it burned and hurt to cough, and it was so painful to swallow that I could barely do it - the sore throat was worse than all the rest put together. I would sweat too, and my chest and ribs ached. The only thing that stopped the pain and burning was the antibiotics. The first one I took wasn't the right one so it took a couple of weeks for them to get it right so they could kick in, but I felt so much better when they did. I had some cough medicine that helped a little with the swallowing so I would take that, then the antibiotics. If you are in the hospital, could they do intravenous antibiotics for as long as you are there? You could change your mind when you feel well enough to go home. Just something to ask about.
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  22. quartz

    quartz Point of Know Return

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    Thinking of you Jesse! Hugs hugs hugs!
  23. yfbg722

    yfbg722 Active Member

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    Intravenous antibiotics are definitely worth considering if it's an option. That's the route they went with me last fall - not because I couldn't swallow but because I needed massive doses of stronger medication. I was able to go home even while on the intravenous. They had a nurse come to my house to change the bag of medication every 12 hours. There's no need to be in hospital if you really don't want to be just because you're on IV antibiotics. It's worth considering Jesse! The sweating may well be caused by fever which is your body's natural attempt at getting rid of the illness. I know how tiresome it is to always be having to deal with medication, medical staff and not feeling well. I've been there. Just try to work with your medical team and remember your goals are the same. I'm really pulling for you and hope that solutions that keep you comfortable and able to sleep will be found soon!
  24. Gazpacho

    Gazpacho Well-Known Member

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    Sending you my best wishes, Jesse. If there's anything at all that any of us can do to make things easier and more comfortable, please let us know. We're happy to help in any way we can.
  25. Rob

    Rob Beach Bum

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    Oh, and my friend who had throat problems from radiation when he had cancer - he loved fruit popsicles - especially lime ones. The cool helped with the swelling and the sweats, plus the fruit/lime gave him a better taste in his mouth. They also got a few calories into him without really having to swallow much.
  26. backspin

    backspin Active Member

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    Great idea Rob!! There are great ones out there made from real fruit & no added sugar, & they're delicious!
  27. Vash01

    Vash01 Well-Known Member

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    This sounds so good! Worth trying, IMHO.
  28. victoriajh

    victoriajh Well-Known Member

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    How are you today our Jesse????
  29. Spazactaz

    Spazactaz New Member

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    Just suuuuuuuper tired again today. Tried until 7:30pm to sleep... no luck. Just cannot fall asleep! If I turn on my side I start sweating and that's basically where I have to be because when I'm awake is when I'm on my back!

    I think we decided we won't go to Skate Canada. :( I think just the plane ride would be too much for me.
  30. kimkom

    kimkom Two Pot Screamer

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    I'm sad to hear that, Jesse, but that's probably the right decision. Get yourself a little bit stronger and enjoy it on television. We'll miss you, and will wave to you...watch for us. :)
  31. Really

    Really No longer just a "well-known member" Yay!

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    I second those sentiments, Jesse, but like you, I'll be watching on TV. I hope you can get some sleep!
  32. cruisin

    cruisin Well-Known Member

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    Jesse, I am so sorry that you won't get to go to SC. I do believe that you have made the right decision, but, it is a sorrowful one. I wish there was something I could say that would make things better. It breaks my heart that you are suffering so. I sincerely hope that you have someone acting as your advocate. I do not question your ability to make decisions. However, hospitals being what they are, you need someone to fight for you. I really hope you reconsider your decision to forgo antibiotics. Doctors do not prescribe them nonchalantly. Ask about different ways of administration, but please think about taking them. I don't know what else to say, but I will pray for you.
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  33. AxelAnnie

    AxelAnnie Well-Known Member

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    Jesse -I am sorry you won't be able to go to Skate Canada. Huge bummer.

    As far as pills and treatments. My vote (not that I have one) is you should do exactly what you want! I hope things get easier for you, and that the bad parts go quickly.
  34. Spazactaz

    Spazactaz New Member

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    I will be able to cancel the hotel... but will I be out of all that money for the plane flights and event tickets?

    I just don't understand why I even need the antibiotics. Perhaps I'll discuss it with the doctor next time I see him though.. who knows when that will be.
  35. backspin

    backspin Active Member

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    I would venture that the airlines might work with you because you have a medical reason for not going. Could you sell the event tickets on ebay maybe? Is there someone there who would be willing to make some calls on your behalf to the airline?

    Even when you're in the hospital, you still don't see your doctor? Any doctor? You have the right to be able to ask questions & get answers. Tell someone you want to see him, it would be pretty appalling if he doesn't come!
  36. Spazactaz

    Spazactaz New Member

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    My mom's going to call both places tomorrow and see.

    He works in the clinic and has his own appts and such... so he only comes to see me if he has a lot of free time.
  37. Vash01

    Vash01 Well-Known Member

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    Jesse,

    Although it's very disappointing, I believe this is the right decision (about SC) at this time. You can focus on getting better right now, enjoy watching SC on TV, and become more comfortable where you are. I hope you can see the doctor and get all your questions answered. I am sure the airlines will work with you because of the medical situation. They may ask for a doctor's certificate. Not sure how they do it now, since we are buying tickets on the internet these days.
  38. rfisher

    rfisher Satisfied skating fan

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    Jesse, you can ask the nurses to call him to come see you. You have rights. In fact, they should be printed and accessible to you as a patient.
  39. Buzz

    Buzz Well-Known Member

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    (((((((Jesse)))))))) take care and sorry you can't sleep.
  40. cruisin

    cruisin Well-Known Member

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    Jesse, when was the last time you saw a doctor? This is unacceptable!
    Vash01 and (deleted member) like this.
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