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Rob
07-20-2010, 06:49 PM
Since Friday, I have been having intermittent stabbing pain where my jaw line meets my ear on the left side. I have TMJ, but I am not having a flare up - no pain in the jaw, no locking, no pain inside the ear, and no dental issues. Doesn't feel the same at all as a TMJ flare up. I also have infrequent migraines, but they are accompanied by aura and it isn't like that either.

The pain is like an electroshock to the face. Lasts a few seconds, stops, comes again every 10-30 seconds. Then it will stop for some random number of hours -- it started Friday night around 8 pm, stopped about 6 pm Saturday, started again in the middle of the night Saturday, stopped around 9 pm Sunday night, started again in the middle of the night Sunday night, lasted till 10 am Monday, stopped till 11 pm Monday and has kept up ever since. Can't really tell if the stoppage is Advil-prompted - at first I thought it was, but now I have taken 5 Advil since 11 pm last night and no relief.

My doctor has been on hiatus between practices and was supposed to be up and running at her new practice 2 weeks ago. It is a new office of a multi-location practice. I called and the new office is postponed so she won't be back till August 2 at a different location. I hate my doctor's old practice, and I work near a medical building so I called 19 doctors all of whom are not taking new patients. I called my doctor's new practice to see if I could see someone at a different office till she got back and I was told I need to wait for new patient processing to call me back. I guess a new doctor at the old practice is a last resort, but they no longer accept any medical insurance and they double bill - which is the reason my doctor left.

My internet searches all come up with one thing - Trigeminal Neuralgia - aka "the suicide disease" because it can be intolerable. It all fits, my age, the pain description, the fact that I had a couple of isolated pain shocks to the eye a few weeks before this started - a typical precursor/warning sign. Sounds like I will need an MRI and some tests to rule out tumors and MS. Treatments include anti-convulsants and weird sounding surgical procedures, but while I am seeking out a referral, there are some homeopathics like B complex and accupuncture. I will try anything at this point, and I figure those can't hurt much if I get a different diagnosis. If anyone knows anything about weird facial pain and has any recommendations on what makes it better or worse, please post!

soxxy
07-20-2010, 06:53 PM
Why wouldn't you go to the emergency room? This may be something more serious than you can investigate on your own.

BlueRidge
07-20-2010, 06:54 PM
geez Rob that sounds terrible. I hope it turns out to be something you can easily treat.

Gazpacho
07-20-2010, 07:02 PM
Why wouldn't you go to the emergency room? This may be something more serious than you can investigate on your own.If it's trigeminal neuralgia, it's not a case for the emergency room.

Rob, I'll PM you.

Rob
07-20-2010, 07:06 PM
I only go to the emergency room if I am bleeding, doubled over, or have been in a car accident. Definitely not if I can still go to work, which I can. This comes and goes and feels chronic, not acute.

Thanks Gazpacho.

Norlite
07-20-2010, 07:08 PM
If it's trigeminal neuralgia, it's not a case for the emergency room.

Rob, I'll PM you.



This interests me as I also have TMJ and have suffered on and off for years (not lately though)


Gazpacho, could you post for all of us. If it's too personal, then just a description or overview without the personal info?

thanks.

Rob
07-20-2010, 07:16 PM
Here is a description. Again, not positive this is what it is till they've ruled out other stuff, but it is an exact fit:

http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/trigeminal_neuralgia.htm

And more:

http://www.mayoclinic.com/health/trigeminal-neuralgia/DS00446



My TMJ pain has been more in the joint or in the ear canal.

Here is a helpful site Gazpacho sent me:

http://www.fpa-support.org/index.html

Rob
07-22-2010, 11:28 PM
Went to Dr. - told him about my symptoms, told him I have TMJ. Didn't lead him into any particular diagnosis.

He came back with a diagnosis of TGN. Sigh. Still waiting for some more test results, but ah, well, now I have meds.

BittyBug
07-23-2010, 03:40 AM
Sorry to hear that, Rob. Are the meds helping?

Japanfan
07-23-2010, 12:07 PM
What a harsh condition to dead with, Rob. Hope you're finding some relief?

Rob
07-26-2010, 09:37 PM
Yes, the meds are really helping. No lightning bolts or ear-zings for 2 days! So far, so good - just a little drowsiness at first, but I seem to have gotten used to it. No nausea, double vision, etc. And I am on a really low dose which is good. I have to get regular blood tests so I will see about that in a few weeks.

BlueRidge
07-26-2010, 09:39 PM
Glad to hear it is helping, Rob!

StonewshMullet
07-26-2010, 10:38 PM
My internet searches all come up with one thing - Trigeminal Neuralgia - aka "the suicide disease" because it can be intolerable. It all fits, my age, the pain description, the fact that I had a couple of isolated pain shocks to the eye a few weeks before this started - a typical precursor/warning sign. Sounds like I will need an MRI and some tests to rule out tumors and MS. Treatments include anti-convulsants and weird sounding surgical procedures, but while I am seeking out a referral, there are some homeopathics like B complex and accupuncture. I will try anything at this point, and I figure those can't hurt much if I get a different diagnosis. If anyone knows anything about weird facial pain and has any recommendations on what makes it better or worse, please post!

My Mother has suffered from this for 20 years. I called her and read your message and she said it sounded familiar but when she is under attack she can't talk, eat or function. None of that homeopathics stuff really worked. She did say that a pepper cream she puts on her face helps but they only thing that really works is tegretol.

Meredith
07-27-2010, 12:31 AM
I'm happy to hear the meds are working, Rob. Will you have to keep on taking the medication, or will your m.d. try to wean you off of it after a spell?

Gazpacho
07-27-2010, 04:40 AM
I'm happy to hear the meds are working, Rob. Will you have to keep on taking the medication, or will your m.d. try to wean you off of it after a spell?I don't know what you mean by "wean off of it after a spell", but some medications can be taken on an as-needed basis when the attacks happen. Other medications can't be taken as-needed, so you have to take them even if you're not experiencing an attack at the moment. An as-needed medication is preferable all else equal, but it depends on what the patient responds to. TGN is also a lifelong condition unless the patient undergoes surgery and that surgery is successful.

Rob, did you get the book I PMed you? I can't recommend it highly enough.